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Alexander Stepin is raising money for DebRA

Alexasnder's story - Life in bandages

Event dates: 14th May 2018 – 20th June 2018

My story

Hello, my name is Alexander, I'm 16 and I'm from the city of Khabarovsk. From birth I was diagnosed bolesny bullosa. Due to the fact that the fingers of my hands together, I was vunuzhden flying to Germany to do operation on straightening. Twice, first on the right hand, and then on the left. Also I have big problems with the teeth because of the inability to open your mouth wide, as a result, Russian doctors can't treat teeth ( except that only the front) and so again I vunuzhden was to fly to Germany. I also have problems with lack of iron in the body, resulting in me hemoglobin 90-80. Present I Cilicia, but this is probably the least of my problems. I have very big problems with weight and muscle mass, height 165cm, my weight is only 25kg. I also have low levels of male Harmon - testosterone and causing puberty does not start. A large number of wounds on the body, and that is what 80% of my body won't let me live a full life I want to live for 16 years... To care for so many wounds leaving not only a huge amount of dressing tools, but a huge amount of time and effort. Summing up this, I want You to help me. I know that this method of treatment Your experiment, but the other way, and I have no choice. Please help me. Sincerely, Alexander.

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Alexander Stepin is fundraising for


Charity number: 1084958

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