Sully’s Challenge

Throughout 2022 myself and other family and friends will be walking/running/swimming/cycling 22 miles per week to raise awareness of Narcolepsy.
After 2 years back and forth hospital appointments and many difficult days for Sully, he was diagnosed with Type 1 Narcolepsy just before Christmas. He has narcolepsy with cataplexy, which is a sudden loss of muscle control when he experiences an intense emotion such as laughing. He will face challenges throughout his life (at present there is no cure for narcolepsy) but right now our first challenge is educating people on his condition and raising money for the charity Narcolepsy UK . Please follow the link to find out more about narcolepsy and if you are able to give anything we would be so very grateful. We will be tracking our activity on Strava 🙌