Charles Jones and Sophie Hughes
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Great work mate.
Event dates: –
Jordan Webb is raising money for DEBRA
DEBRA is a national charity and patient support organisation for people living with epidermolysis bullosa (EB), also known as Butterfly Skin. In October I will be Tackling Kilimanjaro, the highest free standing mountain on earth to raise money for this great cause.
This Kilimanjaro trek begins in the lush rainforests of the Lemosho Glades, climbing towards the Shira Plateau. From here it follows the Southern Flank, Barranco Wall and Barafu Route. Our groups have excellent summit success rates (96%), yet the summit night climb – with its 1,000m ascent and 2,000m descent – must not be underestimated.
12 days | Tanzania | Extreme
Debra is a brilliant UK charity that helps children & families across the UK that are affected by EB. A rare incredibly painful group of skin conditions that cause the skin to blister and tear at the slightest touch.
DEBRA is a UK national medical research charity and patient support organisation for people living with the rare, extremely painful, genetic skin blistering condition, epidermolysis bullosa (EB) also known as ‘butterfly skin’.
EB is short for epidermolysis bullosa.
Inherited EB is a group of rare and incredibly painful genetic skin conditions that cause the skin to blister and tear at the slightest touch. With skin as fragile as a butterfly’s wings, EB is often referred to as ‘butterfly skin’.
* It is thought to affect at least 5,000 people in the UK and 500,000 worldwide.
The goal is to raise as much awareness and money as possible to help further support and fund the great work that DEBRA UK do.
Thanks for any help with any donations! 😊
Thank you for checking out my page. Making a donation is fast, easy and secure thanks to Give as you Live Donate. They'll take your donation and pass it onto DEBRA.
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Great work mate.
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What a wonderful thing to have done to help the alleviate the pain caused by EB
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Brilliant, Webby!
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Amazing work Jordan👏🏾
Very , very proud of you brother.
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Well done Jordan and group. Such an amazing cause - you smashed it x
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Unreal effort Webbdog. Proud of you mate x
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Well done Webby!