Paris 2025 for DEBRA UK

Hi all, I’m running Paris Marathon 2025 on April 13th to raise awareness and money for DEBRA UK. This is a brilliant UK charity that helps children & families across the UK that are affected by EB. A rare incredibly painful group of skin conditions that cause the skin to blister and tear at the slightest touch.

DEBRA is a UK national medical research charity and patient support organisation for people living with the rare, extremely painful, genetic skin blistering condition, epidermolysis bullosa (EB) also known as ‘butterfly skin’.

What is EB?

EB is short for epidermolysis bullosa.
Inherited EB is a group of rare and incredibly painful genetic skin conditions that cause the skin to blister and tear at the slightest touch. With skin as fragile as a butterfly’s wings, EB is often referred to as ‘butterfly skin’.

* It is thought to affect at least 5,000 people in the UK and 500,000 worldwide.

The goal is to raise as much awareness and money as possible to help further support and fund the great work that DEBRA UK do.

Thanks for any help with any donations! 😊