You can help end the pain of EB

‘We want relief, and we want it now. We don’t want to wait 10 to 15 years…[Jasmine] needs help now’
- Anna Ritchie, Jasmine’s Mum

Jasmine and thousands of children and adults like her live with unimaginable pain.

Epidermolysis bullosa (EB) is a rare, genetic skin condition that causes skin to blister and tear at the slightest touch. It leaves open wounds, constant risk of infection, and relentless, agonising pain.

In its worst cases, it can be fatal.

But pain doesn’t have to define Jasmine’s future. Momentum is building. DEBRA has discovered much what we know about EB and now we understand how we might stop it.

Working with world leading scientists, DEBRA has identified at least 35 existing drugs that could potentially be used to treat EB. These treatments already exist. Now they must be tested in clinical trials to see if they can be safely repurposed for EB.

‘With research you can only progress with funding’
- Professor Chris Griffiths, Emeritus Professor of Dermatology University of Manchester, Adjunct Professor Kings College London.

Each clinical trial costs £500,000 and without funding these potential treatments remain out of reach. You are the key to a future without the pain of EB.

Please donate today to support people like Jasmine and thousands like her.

Your monthly donation can help fund research now and, in the future, as well as provide ongoing support to people living with EB.

• £5 a month – can help provide sustainable funding to new research projects
• £10 a month – can improve quality of life for someone with EB with ongoing daily support and hope for a treatment in the future
• £25 a month – can pay for an hour research by a PhD student, researching treatments to stop the pain of EB

By donating, you can help give the EB community the chance to live without constant pain and help improve quality of life for people living with all types of EB. Your donation will be used where there is the greatest need.

Watch our appeal video below.