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Total raised so far

22%

£225.00 of £1,000 target +£51.25 Gift Aid See breakdown

Recent donations

yesterday

Rebecca

£20.00

Nice gesture. Good Luck !

2 days ago

Sandy

£30.00 + £7.50 Gift Aid

5 days ago

Stephen Brown

£10.00 + £2.50 Gift Aid

Well done you. Small charities need all the help they can get.

6 days ago

Jackie Jones

£20.00 + £5.00 Gift Aid

You will eat up those miles! 🚲xx

1 week ago

Anonymous

£20.00 + £5.00 Gift Aid

Good luck!

1 week ago

Anonymous

£5.00 + £1.25 Gift Aid

1 week ago

Colin & Sally

£30.00 + £7.50 Gift Aid

Good luck for the 19th of June!!

1 week ago

Janet

£30.00 + £7.50 Gift Aid

Good luck for your 100 miles x

1 week ago

Dorothy and Mark

£30.00 + £7.50 Gift Aid

Enjoy the cycle ride. Happy to support a great cause.

2 weeks ago

Jane Mason

£30.00 + £7.50 Gift Aid

Great challenge for a wonderful cause, enjoy yourself!

Maryrose Brennan is raising money for Pitt Hopkins UK

100 mile cycle ride with CTC friends to raise money for Pitt Hopkins UK

Event date: 19th June 2022


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My story

Thanks for clicking on this link and offering to donate to our UK charity. I am very grateful.

Let me explain why I am doing the ride :

Firstly, I recently started volunteering as a Trustee with a small charity called "Pitt Hopkins UK'. I am really enjoying supporting this dedicated group of parents who continually strive to better understand Pitt-Hopkins Syndrome (PTHS) and to come up with new ways to support their children.

Secondly, I have joined a great cycling group here in Edinburgh called " CTC Edinburgh, Lothians and Borders" who have been most welcoming to me, as a fairly new resident of the city. We cycle regularly on Wednesdays and Sundays. and the club also offers a Tuesday evening spin. They are a great bunch and hence I am looking forward to riding this challenging 100 mile cycle (7,280 feet ascent) with a sub-group of them on June 19th in Midlothian. We will of course be stopping off for coffee & cake (purely for nutritional reasons !) whilst enjoying our usual banter. I am reluctant to make any predictions about the Scottish June weather....

Some background on Pitt-Hopkins Syndrome (PTHS):

PTHS is an ultra-rare neurodevelopmental condition affecting a specific gene in chromosome 18 called TCF4. The symptoms become apparent in childhood and are typically characterised by developmental delay, breathing problems, recurrent seizures, gastrointestinal issues, lack of speech and distinct facial features. In the UK and Netherlands prevalence is estimated as 1 in 225,000 to 300,000.

The money we raise aims to significantly improve awareness levels of PTHS, particularly among health professionals and to support and advocate for families. Additionally we would like to fund some specific research in dedicated areas.

Every little helps so please donate what you can, especially in this tough financial climate.

Thanks a million for your support. Maryrose


Thank you for checking out my page. Making a donation is fast, easy and secure thanks to Give as you Live Donate. They'll take your donation and pass it onto Pitt Hopkins UK.

My updates

1 week ago

Sunday May 15th - did another great ride with the club and this time we headed over the Forth Bridge to a little place on the coast called Limekilns where we had lunch ( no cake this time !). By the time I got home it was a 46 mile route so a few more miles added to my training tally.

Image uploaded with update

2 weeks ago

Wednesday 11th May - we did an epic ride north of Edinburgh and over the Forth Bridge into Fife heading to Strathmiglo and Falkland with a brief stop at the super Pillar of Hercules Organic Farm Shop and cafe (cafe@pillars.co.uk for details). Distance was 83 miles (yes, you are reading this correct!) and 5,342 feet of ascent. Selected cake this time....a slice of malted tea cake.....yum.

2 weeks ago

Preparation update : Sunday May 9th, we did a great club cycle (40 miles) into East Lothian and back along the coast into Musselborough with a toasted sandwich stop at a local garden centre. To get into the "cake frame of mind", I baked a Sable grape and almond cake on Sunday night & you will be pleased to hear I gave half of it away to my sister & family - it was wolfed down in seconds !

Image uploaded with update

Maryrose Brennan is fundraising for

Pitt Hopkins UK

Charity number: 1167153

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