Skip to main content

Total raised so far

£260.00 +£65.00 Gift Aid See breakdown

Recent donations

3 weeks ago

Anonymous

£60.00 + £15.00 Gift Aid

Merry Christmas to Beauden’s Great Granny & Grandpa and Granny and Grandpa x

3 weeks ago

Mummy and Daddy

£100.00 + £25.00 Gift Aid

Love you always xxx

3 weeks ago

Granny and Grandpa Turnbull

£100.00 + £25.00 Gift Aid

For our darling grandson Beaudy who is deeply missed and always in our hearts.

Beauden Brave are raising money for Tiny Lives Trust and Newcastle Hospitals Charity

Beauden Brave


Share this page with your friends:

Share on Twitter

Our story

Beauden Brave

As Beauden Brave, we actively fundraise and encourage others to fundraise for the Tiny Lives Trust and the Beauden Brave Fund administered by the Newcastle Hospitals Charity. Anything raised by Beauden Brave is split evenly between the Tiny Lives Trust and the Beauden Brave Fund administered by the Newcastle Hospitals Charity. Beauden Brave does not handle any money, all donations go directly to the Tiny Lives Trust and the Newcastle Hospitals Charity. The Beauden Brave fund administered by the Newcastle Hospitals Charity is used to fund:

- improving and delivering end of life care on NICU at the the RVI in Newcastle upon Tyne;

- improving and advancing the care of babies born with genetic disorders; and

- improving and advancing the care for people with Myotonic Dystrophy (the rare genetic disorder that Beauden had).

More information is available at beaudenbrave.org

Beauden Philip Turnbull

Beauden ('Beaudy' to Daddy) was born early on 25th February 2021. His due date was 22nd April. We thought we were experiencing a normal pregnancy until 23rd February, when Beauden was diagnosed with a Congenital Diaphragmatic Hernia following Magda's early labour signs. Efforts were made to keep Beauden as a bump, but he was ready to arrive and did so only a couple of days later on the Delivery Suite at the RVI, with a Neonatal team on standby. He was a whopping 3lbs 11 ounces.

As quickly as he arrived on that Thursday morning, he disappeared off to the Neonatal Intensive Care Unit (NICU) which would become his home until the 4th May, when he passed peacefully in our arms.

The 9 weeks and 5 days he was here, were some of the most difficult and testing times for us as parents. It was discovered that Beauden didn't have a hernia, instead he was diagnosed with a rare genetic condition - Congenital Myotonic Dystrophy Type 1 (CDM1). Because of his fight, he has not only saved his future brothers and sisters from the same condition, but has ensured existing family members are tested and monitored for complications associated with Myotonic Dystrophy. In his short spell he has done so much for others.

He gave Mummy and Daddy the gift of time, time we spent loving every inch of him. We will carry him with us everywhere and nothing makes us prouder than to be Beauden's Mummy and Daddy. We owe him so much.

NICU was his home and home is found in people. We can't praise all the people who 'work' (which seems like such an inadequate word to describe what they do) on NICU enough. They were holding our hands every step of the way. No parent should have to face what we have, but if they do, people like those found on NICU should be there to guide them.


Thank you for checking out our page. Making a donation is fast, easy and secure thanks to Give as you Live Donate. They'll take your donation and pass it onto Tiny Lives Trust and Newcastle Hospitals Charity.

This page is in memory of

Beauden Turnbull

Beauden Brave are fundraising for 2 charities

Tiny Lives Trust

Charity number: 1150178

Newcastle Hospitals Charity

Charity number: 1057213

More great ways you can raise funds

Help us raise more

Your donations will help the great work Tiny Lives Trust and Newcastle Hospitals Charity do.

Donate now