Charity Skydive for Lugh

Last month we lost our dear cousin, Lugh Baker. Lugh had a rare disability called Angelman Syndrome. Despite having this disability Lugh was always the brightest soul in the room, he was always laughing and always trying to make others laugh too. We all love and miss him very much. I have booked to do a skydive in memory of him with the proceeds going to the Angelman UK charity, below is a little bit about Angelman Syndrome and what the charity does.

Angelman Syndrome (AS) is a rare neurological disorder affecting around 1:20,000 births. Characteristic features include delayed development, severe learning difficulties, little or no speech and issues with movement and balance. Although those affected have a normal life expectancy, they will require support throughout their lives.

Support
We help support people with AS and their families as well as carers of people with Angelman Syndrome. We also provide support to professionals working with the person with AS, who may have met very few or no other individuals with Angelman Syndrome in their professional career.

Education
We aim to educate and raise awareness of this rare neurological condition and the issues that surround it. As with many such conditions, Angelman Syndrome is not just about a simple diagnosis, but requires parents and carers to adapt as situations change and the individual grows older.

Research
We assist many organisations and individuals in carrying out research into Angelman Syndrome and its many related areas. Much of this research has already provided great benefit to families and carers around the world. We are one of the founder members of the international Angelman Syndrome Alliance – a cross border research initiative that is allowing smaller groups to pool resources for the benefit of all.