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Total raised so far

8%

£398.00 of £5,000 target +£22.50 Gift Aid See breakdown

Recent donations

1 week ago

Sandra Jack

£30.00

1 week ago

Kim Mckain

£60.00

2 weeks ago

Susan Campbell

£20.00 + £5.00 Gift Aid

2 weeks ago

Caitlin Innes

£25.00

2 weeks ago

Kim Fraser

£10.00 + £2.50 Gift Aid

2 weeks ago

Craig

£50.00 + £12.50 Gift Aid

Wish you every success again this year.

2 weeks ago

Ian Jackson

£10.00 + £2.50 Gift Aid

A great cause and the lights are a highlight if the year

Alistair Smith and Grant MacDonald are raising money for DRAVET SYNDROME UK and Bone Cancer Research Trust (BCRT)

Christmas Lights BGP Fundraiser 2022

Event dates: 1st December 2022 – 6th January 2023


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Our story

We lost our nephew Gavin Russell in 2021 to Bone Cancer. He was 20 years old. A bright light in our life, and teenager who lived his life coping with the challenges of Ewing Sarcoma. A lover of music, not a performer but a creator, an inquisitive mind, striving for excellence for his art. He was studying to be a sound engineer and loved discovering how sound worked and how it could be used. Unfortunately his life was short but he inspired others to do their best. Gavin will be missed but never forgotten, He enjoyed seeing the displays we created in our garden, as did many other people who often asked if we were doing it for charity, Up to now it has been for the love of doing it, and seeing the joy it brings during the dark nights of winter. But this year we have put even more love and time into creating something very special and our lights shine for the bright light that will never go out in the memory of Gavin. Please come and see our display, walk around the garden and enjoy, and make a donation for the research so gratefully needed so we can understand more about why Ewing Sarcoma effects teenagers in our families. One of the charities we are raising money for this year is Liberty’s Legacy (a Special Fund for Bone Cancer Research Trust) and those funds go to research into Ewing Sarcoma. addition to fundraising for Bone Cancer Research.

We've also decided to raise funds for Dravet Syndrome UK, our niece's daughter, Penney, who has been diagnosed with this life-long rare condition.

Often described as a complex form of epilepsy, Dravet Syndrome is a rare neurological condition that affects around one in every 15,000 people in the UK. As well as experiencing severe, difficult-to-control seizures, children and adults with Dravet Syndrome have varying degrees of intellectual disability and a spectrum of associated conditions (known as ‘comorbidities’), which may include autism, ADHD, behaviours that challenge and difficulties with speech, mobility, eating and sleep.

Dravet Syndrome UK are dedicated to improving the lives of those affected by Dravet Syndrome through support, education and medical research. You can find out more about their work at www.dravet.org.uk.


Thank you for checking out our page. Making a donation is fast, easy and secure thanks to Give as you Live Donate. They'll take your donation and pass it onto DRAVET SYNDROME UK and Bone Cancer Research Trust (BCRT).

Our updates

6 hours ago

#For Gavin and Penney

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6 hours ago

So an hour to go before switch on. Thanks for all your kind words. Let's do this, I know its a bit dreich tonight but that will add to the fun. Remember why we are doing this.

A Donation of £5 funds a Family Welcome back for a newly diagnose family for Dravet Syndrome UK

£30 could fund an hour of essential laboratory time for our researchers investigating new treatments for primary bone cancer. Bone Cancer Research Trust

£50 funds a Super Sibling Award to recognise amazing brothers and sister of those living with Dravet Syndrome UK

£85 is enough to fund one of our talented, young researchers for an entire day in the laboratory as they work towards their PhD studying primary bone cancer Liberty's Legacy

£250 helps to fund a video seizure monitor to increase peace of mind for families Dravet Syndrome UK

£400 is enough to fund a top-scoring junior doctor or medical student to undertake a placement in a specialist treatment centre for primary bone cancer patients, allowing us to raise awareness and encourage specialism in the field Bone Cancer Research Trust

#forpenney #ForGavin #teamdsuk #TeamBones #dravetsyndrome #TeamLibs

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2 days ago

We are so nearly there, switch on 1st of December at 7pm

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5 days ago

So much been going on! Switch on date confirmed soon

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2 weeks ago

Testing the lights!

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Alistair Smith and Grant MacDonald are fundraising for 2 charities

DRAVET SYNDROME UK

Charity number: 1128289

Bone Cancer Research Trust (BCRT)

Charity number: 1159590

More great ways you can raise funds

Help us reach our £5,000 target

Your donations will help the great work DRAVET SYNDROME UK and Bone Cancer Research Trust (BCRT) do.

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