Christmas Lights BGP Fundraiser 2024

In memory of Gavin Russell who's wish was that money was raised for research to fund a cure for Ewing Sarcoma and for Dravet Syndrome UK, Penney McKain was diagnosed with Dravet Syndrome and money raised if for family support.

Remembering Gavin Russell 🧡
Gavin was only 13 years old when he was diagnosed with Ewing sarcoma. He sadly passed away three years ago aged just 20 years.
Following their son's death Gavin's family and friends have been huge supporters of Liberty's Legacy, a Special Fund of the Bone Cancer Research Trust 🦋
Together we continue to support raising money for vital research into Ewing sarcoma .This has included running marathons with a giant Aldi UK Kevin the Carrot, holding cake sales, filling collection tins, wreath making and supporting the Christmas Light Fundraiser🏃‍♂️🥕
As always we are grateful for the support shown by the Oakbank community and people of Perth.
#ForGavin #LibertysLegacy #TeamLibs #BoneCancer #Fundraising #UntilTheresACure

We've also raising funds for Dravet Syndrome UK, our niece's daughter, Penney, who has been diagnosed with this life-long rare condition.
Joanne and Ross McKain, Penney’s Mum and Dad told us “Penney was born a happy and healthy girl in August 2021. At 7 months old, Penney had a prolonged seizure and after gene testing it was confirmed she had a gene mutation causing Dravet Syndrome, a terminal, life limiting, life threatening seizure disorder. This was heart breaking news for Penney's parents who also have 4 other children. Unsure of what the future held for Penney or the family - the next few months were dark times but as Penney started to grow and learn, she blossomed into the happiest, friendliest little girl with boundless energy and enthusiasm. Penney still faces many challenges with frequent visits to Ninewells in an ambulance but nothing gets in her way of enjoying her life to the full. Penney loves to sing, dance and make friends, she is always the life and soul of the party. Every day with Penney is a gift and an amazing adventure, she is adored by her parents, siblings and wider family. Dravet is a devastating illness with a much higher mortality rate than typical epilepsies, every penny raised for Dravet syndrome UK goes to support families and fund life saving equipment.”