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Total raised so far


£698.00 of £400 target +£101.25 Gift Aid See breakdown

Recent donations

9 years ago

Adam's work


9 years ago

Helen and joe

£25.00 + £6.25 Gift Aid

9 years ago

Katarina Wilkie

£20.00 + £5.00 Gift Aid

9 years ago

rach and phil

£20.00 + £5.00 Gift Aid

Well done Claire - you did excellent and what a good causex

9 years ago

The Franklins

£20.00 + £5.00 Gift Aid

Well done!!!! x

9 years ago

Christine Cooper

£10.00 + £2.50 Gift Aid

On behalf of the Voses, well done, amazing time xx

9 years ago

Michelle and Craig newby


were very proud of you Claire. You never cease to amaze me!x

9 years ago

carol green

£10.00 + £2.50 Gift Aid

well done Claire. all in a very good cause too x

9 years ago


£25.00 + £6.25 Gift Aid


9 years ago

Claire Pat

£20.00 + £5.00 Gift Aid

Good luck Dides. I'll be thinking of you xx

Claire Pennyfather is raising money for GORLIN SYNDROME GROUP

Claire's Marathon Fundraising Page

Event date: 28th April 2013

My story

I am taking part in this years Greater Manchester Marathon on Sunday 28th April. This will be my first ever marathon and is definitely the biggest challenge I have ever set myself.

I will be running in support of the Gorlin Syndrome Group and hoping to raise as much money as possible. The Gorlin Syndrome Group was founded by my late uncle Jim who sadly passed away from the rare genetic condition in 2002 aged just 51.

Jim set up the group in 1992 after he was diagnosed with Gorlin Syndrome to provide support and information to other families across the UK, Europe and America who also suffered from Gorlin Syndrome. Before the group, people where isolated, had very little information and often received inappropriate treatment because of lack of knowledge. Jim worked with hospitals and specialists which resulted in more research, knowledge sharing and improved treatment.

The condition meant that Jim suffered from multiple cysts, and skin cancer with extensive spread to other organs of the body . The condition also left him blind. He was constantly in and out of hospital having treatments and operations. Despite all the pain and difficulties Jim suffered, he was always positive, helping and caring for others, making people smile and making the most of his life. He never complained or felt sorry for himself for having this condition; he just wanted to help others and worked tirelessly to raise awareness of Gorlin Syndrome to help people receive the right treatment so that no one else would have to suffer to the extent that he did.

I want to raise as much money as possible to help support the group that he worked so hard to build so that his legacy can continue. Your support and any amount of sponsor would be greatly appreciated and would make such a difference to people and their families who are affected by Gorlin Syndrome.

If you would like more information on Gorlin Syndrome please visit

Thank you

Gorlin Syndrome Group registered charity number 1096361

Thank you for checking out my page. Making a donation is fast, easy and secure thanks to Give as you Live Donate. They'll take your donation and pass it onto GORLIN SYNDROME GROUP.

Claire Pennyfather is fundraising for


Charity number: 1096361

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