#FightEB to help James leave a legacy

We are very sad to announce that #FightEB frontman and DEBRA UK Member, James Dunn, passed away on Saturday, 7 April.

An inspiration to many, James lived by the mottos 'keep smiling' and 'you only live once'.

Our thoughts are with his family. We will all miss him and his incredible positivity.

Rest in peace, James.

Meet 24-year-old James Dunn is 24; he is terminally ill and determined to live life to the full.

James suffers from Epidermolysis Bullosa (EB) - a fatal skin condition that causes constant pain due to unstoppable internal and external blistering.

'In 2015, and again last year, I was diagnosed with an aggressive and ultimately fatal form of skin cancer caused by my EB.'

Luckily, it was spotted early both times and James has been given the all clear for now. But it will be back - it's just a question of when.

He wants to leave a legacy

'If I can say that I helped to make EB a well-known condition that everyone understands, that will be a great legacy to leave behind.' The more well-known EB is, the faster EB awareness will spread.

James reached his financial target £100,000 before Christmas 2017, but now he wants to raise even more!

'I want to raise as much money as possible so that in the future people with EB don't have to suffer the way I have,' says James.

Raising money is important to provide the care and support people suffering from EB need, and to fund research into a cure.

'I don't know how long I have left, but I know I'm too young to pass away from this condition. I want to fight EB. I want to beat EB.'