Freya’s Race Night

Hello all ❤️
Our darling Freya was born with a congenital heart condition - Tetralogy of Fallot. From diagnosis at 22 weeks gestation we knew that she would need open heart surgery to repair this. We are so proud at how she has handled everything and she is absolutely thriving post surgery.
At times it didn’t feel it but we know how lucky we are to have had a baby today where equipment is so advanced and people are so skilled that congenital heart conditions can be detected before birth, and give babies the best possible chance at living with their condition.
Tiny tickers is a charity which provides extra training to sonographers to enable them to detect conditions like Freya’s at the 20 week scan. They also provide excellent information resources for families and amazing support. Fortunately or unfortunately (we’ve yet to decide) Scott and I understood the cardiology terminology but hearing words such as congenital heart, pulmonary stenosis, ventricular septal defect, overriding aorta, cyanotic spells, open heart surgery, bypass.. being spoken about our unborn baby was terrifying. We can only imagine how scary it would having never heard these words before but the information Tiny Tickers provided explained things so well and made it easy to understand.

Freya was born in Glasgow and throughout her care in NICU and again when she had surgery, we were able to stay in Glasgow’s Ronald McDonald House at no expense to us. This amazing place relies solely on donations and provides a comfortable stay with all the homely necessities allowing families with a child in hospital to rest and cook, or just have time away from the hospital environment. The wonderful staff always provide a friendly smile and go above and beyond to help.
We have witnessed the work of many amazing charities since Freya’s diagnosis but these two have stood out for us.