2 weeks ago
Living with fibromyalgia has changed my life. I however can say in a very positive way as it inspired me to found FFU Scotland CIC Scotland’s national fibromyalgia organisation.
I could have been really down on it as when your diagnosed you are left with no support , no information and no idea what it really will mean for your daily living.
I however have always been a helper, a doer and a person to seek to feel more empowered. This is why I created FFU scotland. So I could help others on their journeys and to show that despite a debilitating and fluctuating syndrome that can affect physical , emotional , cognitive , social , occupational and familial areas of life you can achieve. You can adapt and live with fibromyalgia without it defining you.
Some are not so lucky with little support , loss of social network , isolated from society , loss of career , financial poverty, mental health decline ( large factor of syndrome ) , significant reduction in mobility and much more. These are who we need to support.
We have over 4000 followers across scotland on social Media and community , over 2000 members and that’s only the top of the iceberg with 200-300,000 Estimated to be living in scotland with the syndrome.
We have helped with recent emergency hygiene packages during covid delivered to doors , Xmas food and toy hampers over the last three years to those most vulnerable, advocacy benefit support , support meetings , drop ins , awareness raising and networking with agencies and working in partnerships and linking with mps to highlight the need for better pathways and change at government level. Not only this but support the members online and by phone if required and host events and activities to raise the profile.We have so many things coming too !
We are a unique organisation albeit many support pages and groups are out there but we believe that the true help is required in one place you can assist so many with their worries , needs and hopefully empower them to. Direct help and ways to move forward.
FFU Scotland has helped me tremendously to build my confidence, develop new skills and learn to manage my syndrome as best I can. I would be lost without the fibromyalgia community we have been building.
Members may always think we are helping them but in doing so they have helped me and I can’t think of a better way than to say thank you to host this birthday fundraiser not only to donate funds but highlight the importance of this organisation to myself and the members and community we help.
Lockdown is not fun for anyone and our fibromyalgia Community have been really struggling. I would love to boost our work with celebrating my birthday during lockdown with some fundraising
Anyone that wishes further info on the organisation please email firstname.lastname@example.org
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