Pilates Marathon for PFP

On the 13th of May, I am aiming to complete a 12hr Pilates marathon on behalf of Purple Field Productions and their work in Malawi on Albinism.

Work is underway on a new documentary with The Kasungu Film Collective, highlighting the shocking treating of people with albinism. Whilst stigma and discrimination is a deep-rooted social issue in Malawi, it is clear that the level of violence against persons with albinism has escalated at an alarming rate in recent years. This violence is fuelled by a widespread belief that albino body parts possess magical properties which can bring luck and wealth. There are many incidents of persons with albinism being abducted, killed and maimed.

The issue became a national issue during the 2018 general elections, which saw an increasing number of attacks on persons with albinism leading the government to respond with protective measures, including the establishment of temporary safe places.

There are also many health implications to having albinism. It affects the structure and pigmentation of the eye, causing visual impairment ranging from mild to severe. All those affected have extreme sensitivity to light, and many are legally blind. People with albinism are also much more susceptible to skin cancer because the lack of melanin in their skin leaves them unprotected from the sun. It is believed that most children with albinism as young as 10 in sub-Saharan Africa have some form of early-stage skin cancer and only 2% live beyond age 40. Many persons with Albinism, especially those in rural communities, are not aware of the danger from the sun and how to protect themselves effectively. Most do not have access to sunscreen.

What is so distressing is that many of the critical health risks associated with albinism are manageable. Education is critical here. Film can play a vital role in spreading knowledge and advice that can lead to healthier outcomes. The use of film and community screenings will be an integral part of PFP's educational approach.