Skip to main content

Total raised so far

£1,665.00 +£398.75 Gift Aid See breakdown

Recent donations

23 hours ago

Ewan Carnegie

£50.00 + £12.50 Gift Aid

Well done!! Superb cause.

23 hours ago

Kylie Bruce

£10.00 + £2.50 Gift Aid

23 hours ago

James, Niamh & Kieran

£50.00 + £12.50 Gift Aid

All the best Russell, a fantastic cause.

2 days ago

Alex, Ritchie & Harrison

£100.00 + £25.00 Gift Aid

All the best for London Russ! Looking forward to cheering you on round the capital, and for a brilliant cause!

3 days ago

Eileen Tocher

£10.00 + £2.50 Gift Aid

Good luck Russell. I'm sure you'll smash it.

3 days ago

Andy Macdonald

£20.00 + £5.00 Gift Aid

3 days ago

Eleanor Douglas

£30.00 + £7.50 Gift Aid

All the best on the day Russ! Love auntie El

4 days ago

Alison Mack

£10.00 + £2.50 Gift Aid

Wishing you all the best with your run and fundraising for such a deserving cause.

4 days ago

Lorna Martin

£20.00 + £5.00 Gift Aid

Well done Russell and good luck.

4 days ago

Brian Murphy

£20.00 + £5.00 Gift Aid

Good luck Russell , not an easy task but worth the good cause .

Russell Whyte is raising money for Pitt Hopkins UK

Russell Whyte for Pitt Hopkins UK

Share this page with your friends:

Share on Twitter

My story

This is my niece Lexie. Lexie is 5 years old and has Pitt-Hopkins Syndrome (PTHS).

PTHS is an ultra-rare genetic condition that affects a child’s development and causes moderate to severe learning disabilities. Prevalence is estimated at one in 225,000 to 300,000 with only about 300 cases in the UK. Someone with PTHS typically: has problems with their learning and development, such as starting to roll, sit or crawl, develops little or no speech, has distinctive facial features, such as a wide nose and Cupid’s bow in the upper lip, can develop changes in their breathing, may develop seizures or may have digestive problems particularly constipation.

It was obvious from birth that not everything was as it should be with Lexie. After her 1st birthday she received the support of various health professionals with her care. And shortly before she was 3 the cause of her global developmental delay was identified as PTHS following genetic testing. Lexie is currently non-verbal and working very hard on her walking. Her favourite things to do include sand and water play, listening to stories and nursery rhymes and watching her favourite programme, In The Night Garden. Lexie is due to start Primary School after the summer where she will join the Additional Support Needs (ASN) Unit. With the help of her wonderful teachers Lexie will continue on her own unique journey through life, being as happy and fulfilled as she can be. Lexie is a gorgeous little girl with an infectious smile and she brings so much joy to her family, her nursery/school peers and all those involved in her care.

Thank you for checking out my page. Making a donation is fast, easy and secure thanks to Give as you Live Donate. They'll take your donation and pass it onto Pitt Hopkins UK.

Russell Whyte is fundraising for

Pitt Hopkins UK

Charity number: 1167153

Russell Whyte is fundraising as part of

London Marathon 2022

2nd October 2022

Join event

More great ways you can raise funds

Help me raise more

Your donations will help the great work Pitt Hopkins UK do.

Donate now