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Total raised so far

£3,215.00 +£635.00 Gift Aid See breakdown

Recent donations

1 month ago

Gordon and Yvonne

£40.00 + £10.00 Gift Aid

Well done Russell - you did very well!!

1 month ago

Neal Richardson

£30.00 + £7.50 Gift Aid

Well done and a great cause

1 month ago

Martin and Leanne Boddie

£20.00 + £5.00 Gift Aid

Well Fone Whytey. Sorry for the late donation

1 month ago

John Clark

£20.00 + £5.00 Gift Aid

Well done, Russell!

1 month ago

Mike McBain

£5.00 + £1.25 Gift Aid

1 month ago

The partners of Aberdein Considine


Well done Russell -both a fantastic achievement and a very special cause!

1 month ago

Yvonne Gordon

£10.00 + £2.50 Gift Aid

Well done Russell & for a very worthy cause.

1 month ago

Carol Gray

£10.00 + £2.50 Gift Aid

Well done Russell - fantastic achievement!

1 month ago

Rebecca Murphy

£20.00 + £5.00 Gift Aid

Amazing achievement thank you! From a pitt hopinks family xx

1 month ago

Lorna and George Simpson

£20.00 + £5.00 Gift Aid

Well done Russell, great achievement and cause

Russell Whyte is raising money for Pitt Hopkins UK

Russell Whyte for Pitt Hopkins UK

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My story

This is my niece Lexie. Lexie is 5 years old and has Pitt-Hopkins Syndrome (PTHS).

PTHS is an ultra-rare genetic condition that affects a child’s development and causes moderate to severe learning disabilities. Prevalence is estimated at one in 225,000 to 300,000 with only about 300 cases in the UK. Someone with PTHS typically: has problems with their learning and development, such as starting to roll, sit or crawl, develops little or no speech, has distinctive facial features, such as a wide nose and Cupid’s bow in the upper lip, can develop changes in their breathing, may develop seizures or may have digestive problems particularly constipation.

It was obvious from birth that not everything was as it should be with Lexie. After her 1st birthday she received the support of various health professionals with her care. And shortly before she was 3 the cause of her global developmental delay was identified as PTHS following genetic testing. Lexie is currently non-verbal and working very hard on her walking. Her favourite things to do include sand and water play, listening to stories and nursery rhymes and watching her favourite programme, In The Night Garden. Lexie is due to start Primary School after the summer where she will join the Additional Support Needs (ASN) Unit. With the help of her wonderful teachers Lexie will continue on her own unique journey through life, being as happy and fulfilled as she can be. Lexie is a gorgeous little girl with an infectious smile and she brings so much joy to her family, her nursery/school peers and all those involved in her care.

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Russell Whyte is fundraising for

Pitt Hopkins UK

Charity number: 1167153

Russell Whyte is fundraising as part of

London Marathon 2022

2nd October 2022

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