My story
Julie was diagnosed with the horrible Motor Neurone Disease in July 2021. Very quickly Julie lost the ability to walk and had to spend her time in a wheelchair and would sleep in a hospital bed we had installed. She nevertheless remained strong throughout in her mind even though her body was rapidly slowing down.
Julie died on the 20th of October 2022 in St. Margret’s Hospice Hospice in Taunton.
The one thing that was so special for Me, Julie , Tom and Emily was that when Julie was admitted to St. Margret’s Hospice, they got us a cuddle bed. This is in effect a double hospital bed. What this did is to enable us to all cuddle Julie, something we had not been able to do for over a year.
I want to raise funds to enable the hospice to buy another cuddle bed to help others cuddle their loved ones. The funds will go To St Margrets Hospice to help fund the purchase of a Cuddle bed in memory of Julie.
I am also fundraising for the MND Association to help find ultimately a cure for this horrible disease. The funds raised for the MNDA will go for medical research into a cure.
I plan to walk the Southwest coast path, 660 miles, from Minehead to South Haven point. To spend time on my own and some time with friends and family. At the same time to try to raise valuable funds for these very worthwhile charities.
Thank you for checking out my page. Making a donation is fast, easy and secure thanks to Give as you Live Donate. They'll take your donation and pass it onto Motor Neurone Disease Association and St. Margaret's Somerset Hospice.