35km South Downs Walk

Kathleen and I are doing a 35km (21 mile) walk on 12th May on behalf of DEBRA charity to raise awareness of the genetic skin condition EB; for which there is currently no cure.

I started working for DEBRA charity in August and prior to that we were unaware of EB. The main aim of our fundraising is for all our friends and family to know what EB is, to spread the word and raise some money to help!

EB sufferers and their families endure so much. Imagine as a parent seeing your child in constant pain, hours of daily wound dressing, wanting to take the pain away and hold them close but knowing in doing so you could cause their fragile skin to further blister and tear.

Your donations could really help make a difference to these families.

We would love you to spare just a few minutes of your time to watch the video below and read about DEBRA & EB.

Come and join the fight #fighteb

Thank you,
Andy & Kathleen x

DEBRA is the national charity supporting those directly affected by, and working with, Epidermolysis Bullosa (EB), a potentially fatal skin condition that causes constant pain due to unstoppable internal and external blistering. DEBRA provides lifelong support to the entire EB community by liaising with its members to meet their needs and priorities in care, treatment and research.
Working as a team to understand the needs of the entire EB community underpins DEBRA's core strategy. DEBRA offers practical, financial and emotional support to, and advocates for, EB sufferers; partners with the NHS to provide specialist care and internationally-recognised clinical care guidelines; and works with researchers investigating alleviation for the debilitating effects of living with EB.
DEBRA envisages a future when no one suffers from EB. Until then, DEBRA strives to improve the quality of life for our community.