Total raised so far
32%
£1,572,700.24 of £5,000,000 target +£6,189.10 Gift Aid See breakdown
Recent donations
About us
DEBRA is the national charity supporting those directly affected by, and working with, epidermolysis bullosa (EB), a potentially fatal skin condition that causes constant pain due to unstoppable internal and external blistering. DEBRA provides life-long care and support to the entire EB Community. Visit www.DEBRA.org.uk or call 01344 771961 to learn more.
A Life Free of Pain
A life free of pain is what we all want. Unfortunately for people living with EB, excruciating pain is something they must live with, every day.
EB is an incredibly painful genetic skin blistering condition. It causes the skin to blister and tear at the slightest touch. With skin as fragile as a butterfly’s wings, it’s often referred to as ‘Butterfly Skin’. EB can affect the hands and feet only or in the most severe cases any part of the body, including blistering on the eyes and internal organs. People living with EB live in constant debilitating pain and in severe cases it can be fatal.
There is hope though.
There are drugs already available within the NHS to treat other inflammatory skin conditions such as Psoriasis and Atopic Dermatitis which could significantly improve blistering and overall quality of life for people living with EB.
With your help we can test these drugs, with your help we can find treatments that will enable people to live free from the pain of EB.
Thank you.
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Our Strava activity
2161.6km distance
237:57:03 time
6 fundraisers
252 activities
via Strava
Melanie Running 4 Butterflies
Melanie Kobras
£1,820.00 raised of £2,000.00 target
Skydive for DEBRA
Charlotte Delpino
£743.00 raised of £850.00 target
Kirsty and Dad's Fundraising Page
Kirsty Stewart
£940.00 raised of £1,000.00 target
Arina runs London Marathon for DEBRA
Arina Vodyanitskaya
£2,150.00 raised of £2,500.00 target
