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Total raised so far


£4,516,426.47 of £5,000,000 target +£211,242.40 Gift Aid See breakdown

Recent donations

3 days ago

Hazel Clark


+ £7.50 Gift Aid

Really hope this suffering can end soon

About us

DEBRA is the national charity supporting those directly affected by, and working with, epidermolysis bullosa (EB), a potentially fatal skin condition that causes constant pain due to unstoppable internal and external blistering. DEBRA provides life-long care and support to the entire EB Community. Visit or call 01344 771961 to learn more.

Charity number: 1084958

A Life Free of Pain

A life free of pain is what we all want. Unfortunately for people living with EB, excruciating pain is something they must live with, every day.

EB is an incredibly painful genetic skin blistering condition. It causes the skin to blister and tear at the slightest touch. With skin as fragile as a butterfly’s wings, it’s often referred to as ‘Butterfly Skin’. EB can affect the hands and feet only or in the most severe cases any part of the body, including blistering on the eyes and internal organs. People living with EB live in constant debilitating pain and in severe cases it can be fatal.

There is hope though.

There are drugs already available within the NHS to treat other inflammatory skin conditions such as Psoriasis and Atopic Dermatitis which could significantly improve blistering and overall quality of life for people living with EB.

With your help we can test these drugs, with your help we can find treatments that will enable people to live free from the pain of EB.

Thank you.

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Our Strava activity

4682.5km distance
483:57:00 time
8 fundraisers
431 activities
via Strava
Graeme Souness swimming the English Channel for DEBRA

Graeme Souness swimming the English Channel for DEBRA

Graeme Souness

£1,382,107.02 raised of £1,100,000.00 target

Running the Cardiff Half Marathon for DEBRA

Running the Cardiff Half Marathon for DEBRA

William Hinton

£2,115.00 raised of £1,750.00 target

Charlie's plod through the Royal Parks

Charlie's plod through the Royal Parks

Charlie Wood

£600.00 raised of £500.00 target

Great South Run - Angie Spall

Great South Run - Angie Spall

Angie Spall

£330.00 raised of £260.00 target

Let's get started

Start raising donations for DEBRA!