I am running at 10k for Beacon for Rare Diseases

On Sunday 30th April, I will be running GEAR 10k in Kings Lynn. I am fundraising for the rare disease patient group Beacon. I have worked alongside Beacon for years and have seen first-hand what an amazing, hardworking team they are. The impact they have had on rare disease patient groups is extraordinary and inspirational.

Rare diseases affect between 3.5% (263 million) and 5.9% (446 million) of the global population. Sadly, this population struggles to receive a diagnosis, treatment or meet another with the same condition. Patient groups are a lifeline for those living with a rare disease. They provide emotional support and advice for day-to-day living. Patient groups are the impetus behind new care pathways and treatments. Beacon helps those groups be the best that they can be.

Every penny raised will go towards patient group training, creating a rare community and helping rare disease research.