Amsterdam & Lisbon Marathons

EB is an incredibly painful genetic skin blistering condition. It causes the skin to blister and tear at the slightest touch. With skin as fragile as a butterfly’s wings, it’s often referred to as ‘Butterfly Skin’. EB can affect the hands and feet only or in the most severe cases any part of the body, including blistering on the eyes and internal organs. People living with EB live in constant debilitating pain and in severe cases it can be fatal.

There are 3,000 sufferers of EB in the UK which means funding to finding a cure is minimal. For a disease that has so few sufferers, I've seen the impact it has had on two different families. The funding and work from DEBRA goes a long way to supporting these families and finding a cure.

So in October I'll be running Amsterdam and Lisbon marathons just 6 days apart. 

Any donations, no matter how small, will go a long way.