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Ana Correia is raising money for NeST - NEPHROTIC SYNDROME TRUST

Hair today, gone tomorrow!

Event dates: 1st July 2020 – 30th September 2020


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Total raised so far

114%

£1,705 of £1,500 target by 48 supporters

+£297.50 Gift Aid

+£0 Offline donations

My story

My son was diagnosed with Nephrotic syndrome (Minimal Change Disease) when he was 4 years old. 'What's that?' I hear you all say, and therein lies the problem! It's a rare and quite unknown condition. Yet it affects many thousands of children and adults around the world. There is no clear reason behind what causes it and there is no one treatment that works for everyone, and all the various treatments involve immune suppression to try and stop the kidneys inflamming and protein leaking. NEST is dedicated to researching this condition and trying to find the answers behind what causes it and hopefully a silver bullet cure! It's NESTs 15 year birthday this year so if I can help contribute with whatever money I can raise then losing all my hair is well worth it! That's right! Having never had hair shorter than a bob, I plan to shave my hair off to help raise as much money as I can for a charity entirely dedicated to finding a way to help all those living with this incredibly difficult condition. So please dig deep and help me reach £1500 target for NESTs 15th!


Thank you for checking out my page. Making a donation is fast, easy and secure thanks to Give as you Live Donate. They'll take your donation and pass it onto NeST - NEPHROTIC SYNDROME TRUST.

My updates

3 days ago

Gosh you guys exceed my expectations and keep giving!! Amazing and feeling so humbled ??

My personal hairdresser (bff) is still abroad but the deed will be done asap!! Stay tuned xx

4 days ago

WE DID IT!!! Thanks to my wonderful family and friends and their wonderful friends and family we've exceeded the target!!! Naveen officially has relapsed this morning so hitting the target today reminds me there is still a long journey for NS sufferers to face, but thanks to you guys we may be a small step closer to a cure in the future!!!

I said I would shave it all off if I met this target so WATCH THIS SPACE!!! ??????

6 days ago

With only 25% left before hitting the big target I'm reminded why I am doing this in the first place. The daily dip test has the power to fill us with hope that we're finally on the path to leaving the dreaded prednisolone behind us... or it can fill us with worry and uncertainty, when anything from a bug, an allergic reaction of even a wobbly tooth triggers a relapse, followed by the inevitable increase in the steroids....sadly we are looking at another relapse after only 2 weeks back at school (a cold and a wobbly tooth!) I can only hope that someday we will be told that there is a cure for NS. That the daily dip test lottery and toxic drugs will be a thing of the past and that we can get our little boy back xx

1 month ago

Half way there and feeling humbled by the generosity of so many. Thank you all so much. Please keep sharing xx

Ana Correia is fundraising for

NeST - NEPHROTIC SYNDROME TRUST

Charity number: 1107601

Ana Correia is fundraising as part of

NeST's 15th Birthday Summer Challenge

1st July 2020 - 30th September 2020

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Recent donations

3 days ago

Lisa Naughton

??

£20.00 + £5.00 Gift Aid

3 days ago

Caroline K

????

£10.00

3 days ago

Deb

£20.00

4 days ago

Anonymous

Sending love to you all x

£30.00

4 days ago

Alison Coote

£20.00 + £5.00 Gift Aid

4 days ago

Danny and amanda

£80.00 + £20.00 Gift Aid

4 days ago

Berry Kleuver

£10.00

4 days ago

Joe Tobin

£10.00

4 days ago

Caroline

I hope you are going to let Devan do the deed as revenge ??! Seriously though, well done! You’re way braver than me!! Xx

£40.00 + £10.00 Gift Aid

5 days ago

Aine&Jon

'A woman who shaves her hair is about to change her life' Great cause Ana

£100.00 + £25.00 Gift Aid

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