Brugada syndrome awareness

I will be taking part in a skydive to raise awareness aswell as money for brugada syndrome, this is a heart condition which is also known as sudden death syndrome, it is an inherited heart condition, which occurs in more males than females. My partner has this condition which he inherited from his father who he lost when he was 13 years old and has undergone testing for the last six years. His dad was only 36years old he wasnt aware he had brugada, as he was fit and healthy, until he was admitted to the icu, after admision he died two weeks later, people who suffer with brugada have a shorter life expectancy. My boyfriend would love to do a skydive however due to his condition he is unable to.
Please help and support this fund by sharing and donating as little or as much as you can!
This would be very appreciated by me and my partners family.