Climbing Spain's Highest Mountain for Kids with EB

Epidermolysis Bullosa is the most painful skin disease you've never heard of.

This bewildering condition means that children are born with skin as fragile as butterfly wings. They blister easily and undergo brutal daily dressing changes and medication to ease the pain. But, beneath all the bandages, creams and drugs they are just the same as any other kids, wanting to play, run and learn.

We- Kerry and Eloise- are by no means thrill seekers. The challenge of climbing Spain's highest mountain is pretty daunting- eeek!

Whilst not the most comfortable 3 days for us, it is nothing compared to the pain that kids with EB go through.

DEBRA are a fantastic support to families with EB. Their aim, through research, is to give future generations a life free from the pain of EB. Funds are desperately needed.

The money we raise - with your support- will help in many ways...from mind blowing scientific trials like gene therapy trials to the simple, such as providing much needed medication.

PS: (note from Eloise) Thankfully, our daughter Eve has a relatively mild form of this rare disease. Yes- dressing changes and regular painful blisters are part of daily life. But Eve is tough. She rarely complains and is very far from being a 'victim' of this bloody awful condition.

We feel fortunate compared to so many other families who suffer with EB. So, if we can collectively raise awareness and a bit of cash to ease that suffering, then we are forever grateful to you xxx

Please see the link attached to show you where your money will go to make a difference.

debra.org.uk/