Cambridge Half Marathon 2026 · 8 March 2026

I am fundraising by running my seventh half marathon for Cambridge Rare Disease Network because I want to raise awareness of CRDN and what they do.

It’s estimated that one in 17 people will develop a rare condition at some point in their life – that’s around 3.5 million in the UK alone, and over 350 million worldwide. If we were to consider their close families, we could estimate that a rare condition will impact one in five of us. Individually the unmet needs of those with a rare condition are often seen in isolation. Cambridge Rare Disease Network brings their voices together to create a powerful chorus to demand and create change.
CamRARE puts those living with rare conditions at the heart of everything we do. We’re creative, innovative, and boldly challenge the status quo.
We support people with and families affected by rare diseases across the East of England region. Our ‘Unique Feet’ community group offers a welcoming environment where families can feel connected, understood and supported, empowering them to be effective advocates.
We raise awareness and facilitate cross-sector collaboration through our innovative educational and networking events such as RAREfest, RAREsummit and regular smaller events. We co-host events with others to reach a more diverse audiences.
Through our Companies Forum meetings, we provide a platform for symbiotic learning and impactful networking for representatives from pharmaceutical, biotechnology, and healthcare companies operating and patient groups in the rare diseases space.
By listening to our community and undertaking research. we identify gaps in support, care, education and integration. We then ensure that those who are unheard are given a voice and those who can help are given access to people with rare diseases to enable patient-centred solutions.
We strive for a world where people with rare diseases are valued and supported.