Chloe & James Run for Debra

This year, we’ve set ourselves a big challenge – we’re taking on a 10K in May and a Half Marathon in October to raise money and awareness for DEBRA, a charity that supports people living with Epidermolysis Bullosa (EB), also known as "butterfly skin" due to its delicate nature, as fragile as a butterfly’s wing.

EB is a painful and life-limiting genetic condition, causing the skin to blister and tear at the slightest touch. It’s something very close to our hearts because of our friend Lucas, who has faced every challenge with incredible strength and resilience. 

Recently, he received the tough news of a skin cancer diagnosis, a complication of his condition. People with Recessive Dystrophic EB (RDEB) are at increased risk of developing cutaneous squamous cell carcinoma (cSCC), a form of non-melanoma skin cancer. While this can be serious, ongoing research funded by DEBRA is helping to better understand how cancer develops in EB and explore new treatments for the future.

DEBRA provides vital research, medical support, and advocacy for those living with EB and their families. The money raised helps fund groundbreaking research into better treatments and, ultimately, a cure. It also ensures that those affected have access to specialist care, emotional support, and essential resources, helping families navigate the daily challenges of EB and its complications.

A half marathon feels like a massive challenge for us, but it’s nothing compared to the pain and obstacles that those with EB face every single day. Lucas and so many others inspire us to push through every tough moment, knowing that what we’re doing is for an incredible cause.

We’d love for you to support us – whether it’s a donation, sharing our page, or just cheering us on! Every step we run is for Lucas and the amazing EB warriors out there.

Thank you so much for your support!

Chloe & James 🦋