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Total raised so far

£903,484.63 Online & offline donations +£5,373.94 Gift Aid See breakdown

Recent donations

About us

DEBRA is the national charity supporting those directly affected by, and working with, epidermolysis bullosa (EB), a potentially fatal skin condition that causes constant pain due to unstoppable internal and external blistering. DEBRA provides life-long care and support to the entire EB Community. Visit DEBRA.org.uk or call 01344 771961 to learn more.

Charity number: 1084958

Corporate partner

BE the difference

In 2024 will you BE the difference for EB?

2023 was a pivotal year for the epidermolysis bullosa (EB) community. The ‘A Life Free of Pain’ appeal, which so many of you kindly supported and which included DEBRA Vice President, Graeme Souness, swimming the English Channel, brought EB to the public’s attention, and delivered much-needed funding that enabled the first EB drug repurposing clinical trial to be commissioned.

There is still much to do, though.

EB is a rare, genetic skin blistering condition that causes the skin to blister and tear at the slightest touch, resulting in incredibly painful blisters, open wounds, and excruciating itch. People with EB live in constant, debilitating pain and need your support today.

You can BE the difference for people living with EB.

With your support, we will continue to invest in the drug repurposing clinical trials that are so important to ensure that in the future there is an effective drug treatment for every type of EB. Your support will also enable us to provide an enhanced programme of EB community care and support that is vital to improve quality of life for people living with EB today.

Please donate today or set up a fundraising page and BE the difference. Every action takes us one step closer to a world where no one must suffer with the pain of EB.

Thank you.


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Our Strava activity

5171.0km distance
654:01:50 time
9 fundraisers
603 activities
View on Strava
Snowdonia Zipline Challenge

Snowdonia Zipline Challenge

Sian, Kayleigh, Kirsty, Mark, Daniella and Nabs

£575.00 raised of £500.00 target

Claire’s sky dive - Supporting patients living with EB

Claire’s sky dive - Supporting patients living with EB

Claire Dimmock

£340.00 raised of £1,000.00 target

The Butterfly Babes

The Butterfly Babes

The Butterfly Babes

£3,140.00 raised of £3,000.00 target

Great North Run

Great North Run

Matt White

£845.00 raised of £800.00 target

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