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Total raised so far
£5,650,529.17 Online & offline donations +£104,790.42 Gift Aid See breakdown
BE the difference
Raising for DEBRA
Will you BE the difference for EB?
Epidermolysis bullosa (EB), also known as butterfly skin, is a group of rare, genetic skin conditions that cause the skin to blister and tear at the slightest touch, resulting in incredibly painful blisters, open wounds, and excruciating itch. There are currently no cures and people with EB live in constant, debilitating pain.
There is hope though.
With your support we can continue to invest in the drug repurposing clinical trials that are so important to ensure that in the future there is an effective drug treatment for every type of EB. Your support will also enable us to provide an enhanced programme of EB community care and support that is vital to improve quality of life for people living with EB.
Please donate today or set up a fundraising page and BE the difference. Every action takes us one step closer to a world where no one must suffer with the pain of EB.
Thank you.
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Our Strava activity
15223.6km distance
1974:08:06 time
21 fundraisers
1919 activities
Climbing for a Cure - DEBRA UK - Anna & Rob - Kilimanjaro
Anna Ritchie & Robert Dickenson
£33,892.70 raised
Barefoot Walk
Andy Neale
£100.00 raised of £1,000 target
DEBRA UK Challenge 2025
Graeme Souness
£1,012,728.16 raised of £750,000 target
Kilimanjaro Summit Climb
Team DEBRA Scotland
£84,691.36 raised of £85,000 target
About us
DEBRA
Charity number: 1084958
DEBRA is the national charity supporting those directly affected by, and working with, epidermolysis bullosa (EB), a potentially fatal skin condition that causes constant pain due to unstoppable internal and external blistering. DEBRA provides life-long care and support to the entire EB Community. Visit DEBRA.org.uk or call 01344 771961 to learn more.
Recent donations
Anonymous
£5.00
Thank you for your beautiful Christmas display, have a lovely Christmas xx
Anonymous
£10.00
+ £2.50 Gift Aid
Love and sup[port to all the battle against this awful condition. x
Sally Collins
£5.00
+ £1.25 Gift Aid
