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Total raised so far

£87,433.70 Online & offline donations +£1,479.25 Gift Aid See breakdown

Recent donations

About us

DEBRA is the national charity supporting those directly affected by, and working with, epidermolysis bullosa (EB), a potentially fatal skin condition that causes constant pain due to unstoppable internal and external blistering. DEBRA provides life-long care and support to the entire EB Community. Visit or call 01344 771961 to learn more.

Charity number: 1084958

BE the difference

In 2024 will you BE the difference for EB?

2023 was a pivotal year for the epidermolysis bullosa (EB) community. The ‘A Life Free of Pain’ appeal, which so many of you kindly supported and which included DEBRA Vice President, Graeme Souness, swimming the English Channel, brought EB to the public’s attention, and delivered much-needed funding that enabled the first EB drug repurposing clinical trial to be commissioned.

There is still much to do, though.

EB is a rare, genetic skin blistering condition that causes the skin to blister and tear at the slightest touch, resulting in incredibly painful blisters, open wounds, and excruciating itch. People with EB live in constant, debilitating pain and need your support today.

You can BE the difference for people living with EB.

With your support, we will continue to invest in the drug repurposing clinical trials that are so important to ensure that in the future there is an effective drug treatment for every type of EB. Your support will also enable us to provide an enhanced programme of EB community care and support that is vital to improve quality of life for people living with EB today.

Please donate today or set up a fundraising page and BE the difference. Every action takes us one step closer to a world where no one must suffer with the pain of EB.

Thank you.

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Our Strava activity

1081.3km distance
182:31:26 time
5 fundraisers
181 activities
View on Strava
Bridge of sighs.

Bridge of sighs.

Julie and Barrie Webb

£1,695.00 raised of £1,000.00 target

Adam's 2024 London Marathon DEBRA fundraiser

Adam's 2024 London Marathon DEBRA fundraiser

Adam Gibbons

£600.00 raised of £2,500.00 target

Landmark Hotel Runs Landmark London Half Marathon

Landmark Hotel Runs Landmark London Half Marathon

The Landmark London Hotel

£1,070.00 raised of £3,000.00 target

Linden is “Running like L” for DEBRA! (5 x 10k races in 2024)

Linden is “Running like L” for DEBRA! (5 x 10k races in 2024)

Linden Hampton

£300.00 raised of £1,000.00 target

Let's get started

Start raising donations for DEBRA!