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Total raised so far

£4,646,743.94 Online & offline donations +£38,215.61 Gift Aid See breakdown

Recent donations

About us

DEBRA is the national charity supporting those directly affected by, and working with, epidermolysis bullosa (EB), a potentially fatal skin condition that causes constant pain due to unstoppable internal and external blistering. DEBRA provides life-long care and support to the entire EB Community. Visit DEBRA.org.uk or call 01344 771961 to learn more.

Charity number: 1084958

Corporate partner

BE the difference

Will you BE the difference for EB?
 
Epidermolysis bullosa (EB), also known as butterfly skin, is a group of rare, genetic skin conditions that cause the skin to blister and tear at the slightest touch, resulting in incredibly painful blisters, open wounds, and excruciating itch. There are currently no cures and people with EB live in constant, debilitating pain.
 
There is hope though.
 
With your support we can continue to invest in the drug repurposing clinical trials that are so important to ensure that in the future there is an effective drug treatment for every type of EB. Your support will also enable us to provide an enhanced programme of EB community care and support that is vital to improve quality of life for people living with EB.
 
Please donate today or set up a fundraising page and BE the difference. Every action takes us one step closer to a world where no one must suffer with the pain of EB.
 
Thank you.


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Our Strava activity

9554.8km distance
1408:15:30 time
19 fundraisers
1450 activities
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Climbing for a Cure - Anna & Rob  - Kilimanjaro

Climbing for a Cure - Anna & Rob - Kilimanjaro

Anna Ritchie & Robert Dickenson

£4,105.00 raised of £12,000 target

McCarron Brothers take on London Half Marathon

McCarron Brothers take on London Half Marathon

Stephen & James

£890.00 raised of £500 target

DEBRA UK Challenge 2025

DEBRA UK Challenge 2025

Graeme Souness

£212,278.20 raised of £750,000 target

London Landmark Half Marathon for DEBRA

London Landmark Half Marathon for DEBRA

Daniel King

£555.00 raised of £500 target

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