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Total raised so far

£4,589,037.79 Online & offline donations +£32,530.28 Gift Aid See breakdown

Recent donations

1 hour ago

Diane Tew

£10.00

+ £2.50 Gift Aid

Hope this will help to find a solution to this dreadful illness

1 hour ago

Mr Colin Findlay

£10.00

yesterday

Frankie Doherty

£5.00

+ £1.25 Gift Aid

yesterday

Iain Bishop

£10.00

About us

DEBRA is the national charity supporting those directly affected by, and working with, epidermolysis bullosa (EB), a potentially fatal skin condition that causes constant pain due to unstoppable internal and external blistering. DEBRA provides life-long care and support to the entire EB Community. Visit DEBRA.org.uk or call 01344 771961 to learn more.

Charity number: 1084958

Corporate partner

BE the difference

Will you BE the difference for EB?
 
Epidermolysis bullosa (EB), also known as butterfly skin, is a group of rare, genetic skin conditions that cause the skin to blister and tear at the slightest touch, resulting in incredibly painful blisters, open wounds, and excruciating itch. There are currently no cures and people with EB live in constant, debilitating pain.
 
There is hope though.
 
With your support we can continue to invest in the drug repurposing clinical trials that are so important to ensure that in the future there is an effective drug treatment for every type of EB. Your support will also enable us to provide an enhanced programme of EB community care and support that is vital to improve quality of life for people living with EB.
 
Please donate today or set up a fundraising page and BE the difference. Every action takes us one step closer to a world where no one must suffer with the pain of EB.
 
Thank you.


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Our Strava activity

8611.5km distance
1255:01:07 time
18 fundraisers
1312 activities
View on Strava
Phoebe runs the Brighton Marathon

Phoebe runs the Brighton Marathon

Phoebe Hermon

£975.00 raised of £1,000 target

#TeamDEBRA for London Landmarks Half Marathon 2025

#TeamDEBRA for London Landmarks Half Marathon 2025

TeamDEBRA

£295.00 raised of £3,000 target

Ste & Sophie Great North Run 2025

Ste & Sophie Great North Run 2025

Ste Gray & Sophie Gray

£711.00 raised of £1,000 target

Chloe & James Run for Debra

Chloe & James Run for Debra

Chloe Dove and James Holland

£600.00 raised of £1,000 target

Let's get started

Start raising donations for DEBRA!