BE the difference

Will you BE the difference for EB?

2023 was a pivotal year for the epidermolysis bullosa (EB) community. The ‘A Life Free of Pain’ appeal, which so many of you kindly supported and which included DEBRA Vice President, Graeme Souness, swimming the English Channel, brought EB to the public’s attention, and delivered much-needed funding that enabled the first EB drug repurposing clinical trial to be commissioned.

There is still much to do, though.

EB is a rare, genetic skin blistering condition that causes the skin to blister and tear at the slightest touch, resulting in incredibly painful blisters, open wounds, and excruciating itch. People with EB live in constant, debilitating pain and need your support today.

You can BE the difference for people living with EB.

With your support, we will continue to invest in the drug repurposing clinical trials that are so important to ensure that in the future there is an effective drug treatment for every type of EB. Your support will also enable us to provide an enhanced programme of EB community care and support that is vital to improve quality of life for people living with EB today.

Please donate today or set up a fundraising page and BE the difference. Every action takes us one step closer to a world where no one must suffer with the pain of EB.

Thank you.