Anonymous
£50.00
+ £12.50 Gift Aid
Well done Anna + Dad, wishing you the best of luck with your training and the event itself! Well done for all that you do for DEBRA!!
Recent donations
Michelle & Mark Holloway
£100.00
+ £25.00 Gift Aid
This is such an important cause - you are amazing and will smash it for Jasmine! Good Luck both. xx
Kevin Brewer
£25.00
Asia Aldridge
£20.00
+ £5.00 Gift Aid
Wishing you both all the very best in your epic challenge! We’re sure your daughter’s daily courage will drive you to complete this challenge to help find a cure! What an inspiration your daughter is, and you all are! x
Sophie
£10.00
+ £2.50 Gift Aid
Ellen Wilkinson
£20.00
You are such an inspirational family, I hope you raise loads of money and find that cure xxxx
Lynn and Mike Essex
£20.00
Wishing you all the very best with your fund raising efforts. X
Bridie
£20.00
+ £5.00 Gift Aid
Good luck Anna. ❤️
Anonymous
£10.00
+ £2.50 Gift Aid
Jane Hill
£20.00
+ £5.00 Gift Aid
Climbing for a Cure - Anna & Rob - Kilimanjaro
Event dates: –
Anna Ritchie & Robert Dickenson are raising money for DEBRA
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Our story
My dad and I are heading to Africa to take on an epic, challenge-of-a-lifetime, 8-day Kilimanjaro trek to raise money for Debra UK, in the hope of one day finding a cure for 'the worst disease you've never heard of' and giving little Jasmine a chance to be free of pain and enjoy a life she can only dream of.
Most people that know us, will know of my daughter Jasmine, who was born with Recessive Dystrophic Epidermolysis Bullosa (RDEB), which is an extremely rare disease that affects her entire body, causing her to be in excruciating pain every single day. Jasmines form of EB means that the 'glue' that holds the layers of skin together is missing, causing her skin to shear off, blister or tear at the slightest touch. Her body is bandaged from her neck to her toes. The wounds are often compared to those of 3rd degree burns. Imagine then, having to endure 4-5 hour full dressings changes every other day for your whole life. But the thing is - Jasmine doesn't have to imagine, this is her (and our) life.
As you can appreciate, diseases such as these come with their own complications - so if you think what I've said so far is bad enough, Jasmine also has to deal with osteoporosis, partial kidney failure, gastronomy feeds, regular blood transfusions, procedures to release strictures of the throat and inevitably, mental health difficulties. Any one of these on their own is enough to bear, and at her young age, I honestly don't know how she does it - and she shouldn't have to.
This isn't the life a 12 year old should ever have to endure - we need a cure and we need it now.
This is where you can help. Please support my dad and I, as we leave our families (which, when you have a child with EB, is a massive undertaking in itself), and take on the biggest challenge of our lives, to raise as much money as we can, to not only find a cure, but to enable Jasmine, and others just like her, to experience a quality of life they deserve.
Thank you for taking the time to read our story - please feel free to share far and wide.
Thank you for checking out our page. Making a donation is fast, easy and secure thanks to Give as you Live Donate. They'll take your donation and pass it onto DEBRA.
Our updates
There was a point shortly after committing to this journey I thought I’d have to pull out, and after months of pain in my hip, I found out I had a labral tear in my hip joint, which could have stopped this effort in its tracks. However, last week, they put a big stabby needle in me and injected the joint with steroids! I’d like to say I was brave, but then I realised what Jasmine goes through daily and realised, I had a lot to learn.
So today, with a spring in my step, I’m tackling my first hill in about 6 months! I’m far from fit, but it can only get easier 🙂 Let’s do this!
Charity
DEBRA
Charity number: 1084958
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