Graeme Souness, Vice President of DEBRA, on BBC Breakfast with Isla Grist, who suffers from EB yet remains strong in the face of incredible difficulties.
Even a tough Scotsman is emotional when talking about EB
BBC News - Watch: Graeme Souness pays tribute to 'determined cookie' - BBC News
bbc.co.uk/news/videos/cp684wgzpgxo
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Thames Path Challenge Ultramarathon
Event date:
Colin Warrington is raising money for DEBRA
My story
Dear Friend
I'm running 50km (31 miles) of the Thames Path Challenge in aid of the charity DEBRA.
I'm taking on this Ultramarathon on Saturday 14th September, along the towpath from Putney to Runnymede.
DEBRA supports people living with the rare, extremely painful, genetic skin blistering condition Epidermolysis Bullosa (EB). This condition is also known as 'Butterfly Skin'. EB has been described as the 'cruellest condition'.
EB causes the skin to become very fragile and tear or blister at the slightest touch.
Imagine not even being able to hug your child because it is simply too painful for them.
DEBRA works to support sufferers of EB and their families. It also works with researchers to accelerate the pace at which we are going, towards reaching a cure for this terrible condition.
To find more out about #TeamDEBRA and EB please visit their website debra.org.uk/
Thank you for checking out my page. Making a donation is fast, easy and secure thanks to Give as you Live Donate. They'll take your donation and pass it onto DEBRA.
My updates
Thank you so much for your support so far.
Nearly 18 miles covered today. It's not fast, but it felt good.
Got the T Shirt, time to lean in and do some more training.
Charity
DEBRA
Charity number: 1084958
Recent donations
Anonymous
£80.00
+ £20.00 Gift Aid
vicki crossland
£10.00
+ £2.50 Gift Aid
have fun and enjoy the run
Ant
£5.00
+ £1.25 Gift Aid
Jo Marks
£20.00
+ £5.00 Gift Aid
Good luck and happy running!
Anthony and Mary
£50.00
+ £12.50 Gift Aid
Happy to donate to such a worthy cause and good luck with the run!
Paul and Eileen Pinhorne
£25.00
+ £6.25 Gift Aid
We're all behind you
Shelly Brewer
£20.00
+ £5.00 Gift Aid
Good luck Colin with your training, fundraising & event. I recently saw a beautiful little girl on TV called Isla with Graham Souness & her daily suffering is heartbreaking & I'd not heard about this cruel disease until your post. Xxx
Anthony Dweck
£20.00
+ £5.00 Gift Aid
You looked really well after 17 miles on Sunday. Such a wonderful cause. Thank you.
Paul S.
£50.00
+ £12.50 Gift Aid
Its a brilliant charity to raise funds for. Have a great run.
Caroline Lawton
£10.00
+ £2.50 Gift Aid
Wishing you good luck as you fundraise for a very worthy cause.
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