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Total raised so far


£100.00 of £100 target +£12.50 Gift Aid See breakdown

Recent donations

9 years ago

Jon,Michelle and Ari


Well Done Steve!

9 years ago

Lianne Griffiths


+ £2.50 Gift Aid

Well done Steve really proud of you!!! 💕X

9 years ago

Melanie, Ciaran & bump Hopkins


+ £6.25 Gift Aid

well done hubby & daddy! xxx

9 years ago

Chris hetherington


9 years ago

Lex Hopkins


Good luck Steve!

9 years ago



+ £1.25 Gift Aid

Good luck Steve x

9 years ago

Jessica O'Sulivan


+ £1.25 Gift Aid

Good Luck Steve!!!! Youve been training hard for this! :)

9 years ago

Abi Davies


+ £1.25 Gift Aid

good luck :) xx

Cycling for CMT UK

Event date: 27th September 2014

Steven Hopkins is raising money for Charcot-Marie-Tooth UK

My story

Hi, I am going to be cycling 55 miles in aid of the charity CMT United Kingdom. This charity offers help and support to people living with the incurable neurological condition Charcot-Marie-Tooth disease.

This is something that is very close to my heart as my wife, son and brother-in-law have the condition, along with there being a 50% chance of my unborn daughter inheriting it.

CMT is often unheard of, yet affects 1 in every 2500 people. I would like to raise not only money but also some much needed awareness of this condition.

What is CMT and what are its effects? Here are the simple basics...

  • A condition that affects the nerves in the arms and legs
  • The damaged nerves cannot tell the muscles what to do which leads to muscle wastage
  • Is not life threatening
  • Is progressive and so gets worse over time
  • Causes foot drop whereby the person cannot lift the foot up, resulting in trips and falls
  • Causes an abnormal walking gait
  • Causes foot bone abnormalities such as:
    -high arches, resulting in instability
    -hammer toes. toes curl under causing pain and
    difficulty putting on shoes and risks of tripping
    over the toes
    -inward facing feet causing the person to
    regularly twist their ankle when standing/walking
  • Problems with hand function and dexterity, making
    doing up buttons and opening jars extremely
  • Balance problems
  • Long term pain
  • Cramping in legs and arms
  • Loss of normal reflexes
  • Chronic tiredness
  • Legs can have an inverted champagne bottle shape
    where the lower legs are very thin whilst the upper
    leg remains a normal size
  • Poor circulation
  • Possible tremors
  • Difficulty stepping up steps and climbing stairs

As the disease progresses, the need for aids such as splints, walking sticks and wheelchairs are often needed. Adaptations are also often needed for the home.

Please support me in this fundraising effort so that this fantastic charity can continue to provide the much needed help, care and support to every individual affected by CMT.

One day, with your help, hopefully a cure will be found.


Thank you for checking out my page. Making a donation is fast, easy and secure thanks to Give as you Live Donate. They'll take your donation and pass it onto Charcot-Marie-Tooth UK.

Steven Hopkins is fundraising for

Charcot-Marie-Tooth UK

Charity number: 1112370

More great ways you can raise funds