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Total raised so far

214%

£750.00 of £350 target +£178.75 Gift Aid See breakdown

Recent donations

11 years ago

Anonymous

£20.00

+ £5.00 Gift Aid

11 years ago

Anonymous

£165.00

+ £41.25 Gift Aid

Well done.

11 years ago

Victoria Parsons

£5.00

+ £1.25 Gift Aid

Well done!! very proud of you! xxx

11 years ago

Jane (and the boys)

£10.00

+ £2.50 Gift Aid

Well done.xx

11 years ago

Melly

£20.00

Well done Stacey!!x

11 years ago

Adam Smith

£20.00

+ £5.00 Gift Aid

Well done!x

11 years ago

Carl, Tracy, Emma and Owen

£30.00

+ £7.50 Gift Aid

Well done, proud of you.x

11 years ago

gemma

£10.00

+ £2.50 Gift Aid

well done stacey

11 years ago

steve lewis

£5.00

+ £1.25 Gift Aid

11 years ago

michelle lewis

£5.00

Giving to Goldenhar

Event date: 26th May 2012

Stacey Beddows is raising money for Goldenhar Support Group

My story

I am raising money to help the Goldenhar Support Group which is an amazing charity, but due to being generally un-heard of, the funds limit how much they are able to help the people who suffer from Goldenhar and their families, every little amount with make a difference.

I am the very proud god-mother of a fabulous 5 year old girl called Briar who suffers from Goldenhar. She has amazed many specialists with her determination and ability to overcome the endless operations she has had and is still yet to have, as well as proving them wrong with lots of daily things they said she would never be able to do. She is such an inspiration and knowing I can help her and other children by doing this challenge will be my motivation.

Goldenhar syndrome (also known as Oculo-Auriculo-Vertebral (OAV) syndrome, is a congenital condition that is associated with abnormalities of the head and the bones of the spinal column, as well as internal organs such as the heart, kidneys and lungs. The abnormalities of the head can include differences with the eyes, ears, facial bones, and mouth. These differences are extremely variable in severity. The exact cause of Goldenhar syndrome remains unknown.

Treatment is usually confined to such surgical intervention as may be necessary to help the child to develop e.g. jaw distraction/bone grafts, occular dermoid debulking, repairing cleft palate/lip, repairing heart malformations, spinal surgery. Hearing aids placed in one or both ears.

Please help support this charity.


Thank you for checking out my page. Making a donation is fast, easy and secure thanks to Give as you Live Donate. They'll take your donation and pass it onto Goldenhar Support Group.

Stacey Beddows is fundraising for

Goldenhar Support Group

Charity number: 1099642

More great ways you can raise funds