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Hello,

Our friends Joe and Rach welcomed the beautiful Marselle into the world on 26th July 2024. Sadly Marselle was born with severe Epidermolysis Bullosa (EB), also known as Butterfly Skin. This meant his life was heartbreakingly short at just two weeks. 

EB was personally a condition we had never heard of before so we would like to do everything we can to help raise as much awareness as possible and some money for DEBRA.

DEBRA UK is a national medical research charity and patient support organisation for anyone living in the UK with any type of EB, their family members, carers, plus healthcare professionals and researchers specialising in EB.

Max and I will be running the great south run on 20th October 2024 which for me is a huge challenge as someone who has only ever ran 5Ks and would find any excuse to get out of a run. We have under 7 weeks until we run 16K so any donation big or small will be greatly appreciated.

Thank you for reading you will catch us running the great south run in memory of Marselle Robin Haskell, look out for the butterfly wings on our back 🦋💙

Please Read Rach, Joe and Marselle’s story here: 
justgiving.com/crowdfunding/marselle-haskell?utm_term=q75M5gyJx

Thank you,
Lou and Maxi x