Fundraiser
Arek Koprowski are raising money for DEBRA
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Our story
This year, I'm running the Amsterdam Half Marathon—21.1 kilometers of training, discipline, and determination—all to support DEBRA.
I'm not just running for a medal or a photo at the finish line.
I'm running to help a foundation that will can continue investing in clinical trials for new drug applications, which are so crucial to ensuring effective treatments for all types of EB in the future. Your support will also enable us to provide improved care and support for the EB community, which is essential to improving the quality of life for those living with EB.
(EB - Epidermolysis bullosa (EB), also known as butterfly skin, is a group of rare, genetic skin conditions that cause the skin to blister and crack at the slightest touch, resulting in extremely painful blisters, open sores, and excruciating itching. Currently, there is no cure, and people with EB live in constant, debilitating pain.)
Every kilometer you run brings hope, support, and a real impact to those who need it most.
Thank you for checking out our page. Making a donation is fast, easy and secure thanks to Give as you Live Donate. They'll take your donation and pass it onto DEBRA.
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