GJR Construction Runners

Gareth Roberts, Ella Roberts, Dewi Casley, Leanne Casley, Charlie Jones& Scott Murrell will all be running the Swansea Half Marathon June 9th to raise funds for Debra The Butterfly 🦋 Skin Charity. 9 month old Albi was born with Severe Recessive Dystrophic Epidermolysis Bullosa RDEB-GS.
It is a very rare genetic disease that affects Albi both internally and externally. Albi is essentially missing the *glue* (technically known as collagen 7) which attaches the skin to his body; the slightest bit of friction will cause his skin to blister and/shear. Albi was born with significant skin loss at birth, he has to have daily dressing changes to help his wounds to heal and the minimise infections. Albi will wear bandages every day to help protect his skin and reduce new wounds and blisters caused by everything day friction. There is currently no cure or treatments for EB, with cases like Albi’s being fatal in their 20s to 30s - this is why fundraising is so important to help better the lives of those living with EB. Only Leanne has done this run before, please support by donating to this amazing charity 🦋🦋