Great North Run

On the 15th June 2016 our amazing Jamie Jack White was born. It was instantly apparent that something wasn’t right as he was missing a lot of skin from many places on his body. 
Jamie was quickly diagnosed with Epidermolysis Bullosa (EB). Following 3 indescribable weeks we found the full diagnosis of EB Simplex Generalised Severe. 
Jamie initially suffered from approximately 100 blisters a day all over his body and was in constant pain. Whilst Jamie is one the lucky ones with EB due to his life expectancy not being reduced, at 7 years old he still lives with the condition every day with twice a twice daily skin care routine to lance blisters and repair wounds. 
In September I’ll be completing the Great North Run (my first event run!) to raise funds for DEBRA to assist other children and their families who like Jamie deal with this horrendous condition on a daily basis.
If you want to know more about DEBRA and they work the carry out please check out the links below!