3 hours ago
Leigh and Hayley
+ £12.50 Gift Aid
3 hours ago
+ £12.50 Gift Aid
10 hours ago
+ £7.50 Gift Aid
All the best for the run 👊🏼
12 hours ago
You're amazing! Wish we could be there☹️! Xxx
6 days ago
Good luck mate!
1 week ago
For all the training you’ve been doing for Jamie and all the other EB kiddies xxx
3 weeks ago
1 month ago
+ £2.50 Gift Aid
All the best Matt. This is a brilliant thing to do. Lynda Nixon
1 month ago
Good luck Matt, we know you’ll do it👍. Love from Lorraine, Chris and family
2 months ago
Good luck
2 months ago
+ £2.50 Gift Aid
Good luck
Event date: 8th September 2024
Matt White is raising money for DEBRA
On the 15th June 2016 our amazing Jamie Jack White was born. It was instantly apparent that something wasn’t right as he was missing a lot of skin from many places on his body.
Jamie was quickly diagnosed with Epidermolysis Bullosa (EB). Following 3 indescribable weeks we found the full diagnosis of EB Simplex Generalised Severe.
Jamie initially suffered from approximately 100 blisters a day all over his body and was in constant pain. Whilst Jamie is one the lucky ones with EB due to his life expectancy not being reduced, at 7 years old he still lives with the condition every day with twice a twice daily skin care routine to lance blisters and repair wounds.
In September I’ll be completing the Great North Run (my first event run!) to raise funds for DEBRA to assist other children and their families who like Jamie deal with this horrendous condition on a daily basis.
If you want to know more about DEBRA and they work the carry out please check out the links below!
Thank you for checking out my page. Making a donation is fast, easy and secure thanks to Give as you Live Donate. They'll take your donation and pass it onto DEBRA.
Your donations will help the great work DEBRA do.
Donate now