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Ride For The Cure
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Alejandro Garcia Igarza are raising money for DEBRA
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Our story
I will be riding an adapted HS2 route to raise money for Debra The Butterfly Skin Charity.
DEBRA is a UK national medical research charity and patient support organisation for people living with the very rare, extremely painful, genetic skin blistering condition, epidermolysis bullosa (EB) also known as ‘butterfly skin'.
Our Son Marc was born in June 2022 and shortly after birth was diagnosed with Recessive Distrophic EB. The charity has provided amazing support to the whole family after the shock of his diagnosis and continue to offer advice and will do throughout his life.
If you would like to read our story:
debra.org.uk/alejandros-eb-story/
Thank you for checking out our page. Making a donation is fast, easy and secure thanks to Give as you Live Donate. They'll take your donation and pass it onto DEBRA.
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Bicicleta por la tarde
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Charity
DEBRA
Charity number: 1084958
Activity tracker
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7
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9
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Total distance
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