Jonathan's Double for DEBRA

This September, to continue supporting DEBRA and the vital work they do to help improve the lives of people living with Epidermolysis Bullosa (EB), I will be taking on two different challenges, firstly the Great North Run on Sunday 8th and then 6 days later, swimming two miles in the Serpentine.

EB is a debilitating genetic disease in which the skin becomes so fragile it tears and blisters at the slightest touch, EB affects people to different degrees causing lifelong disability and pain and in its worse form can be fatal. There is still no cure for EB, treatments are aimed at trying to alleviate the symptoms and improve the quality of life for those affected. (debra.org.uk/what-is-epidermolysis-bullosa-eb). 

EB has an enormous impact on those affected and their families, If you saw Isla, a girl affected by EB, interviewed on BBC Breakfast recently, you will have heard her say ‘There is no rest, it’s literally 24/7, every day’.

All funds raised are critical in helping DEBRA to support sufferers directly and also to fund research into effective treatments of symptoms and hopefully, a cure for the condition.  If you are able to help me with this and give whatever you can, DEBRA and I would be immensely grateful, every donation will make a real difference. Thank you.