6 days ago
John&Fi
Go for it!!!
6 days ago
Go for it!!!
6 days ago
Good luck Fergus
1 week ago
Good luck both!
1 week ago
1 week ago
Go crush it Ferg and Kirsty!! Xxx
1 week ago
Now go ahead and win it Ferg.
1 week ago
Good luck Kirsty and Ferg, a good effort for a worthy cause
1 week ago
Make sure plenty of porridge pre run good luck
1 week ago
Well done to both of you, a good cause..
1 week ago
Good luck!
Kirsty Stewart is raising money for DEBRA
Event date: 2nd April 2023
DEBRA is the national charity supporting those directly affected by Epidermolysis Bullosa (EB) as well as their families and carers.
EB is a excruciating, genetic, rare skin condition, affecting approximately 5000 babies, children and adults in the UK. With skin as fragile as a butterfly’s wings, it’s often referred to as ‘Butterfly Skin’. EB causes the skin to tear or blister at the slightest touch, leaving incredibly painful open wounds. It can affect the hands and feet only or in the most severe cases any part of the body, including blistering on the eyes and internal organs. People living with EB live in constant debilitating pain and in severe cases it can be fatal. The current standard of care includes daily wound care, pain management, and protective bandaging, which can take over 3 hours to do.
I am running the London Landmarks Half Marathon with my dad to raise awareness of this condition as well as raise money to fund for research for treatments and a cure to help people with EB live a life free of pain.
“When I was sixteen, I started developing severe blistering in my throat. Swallowing food can feel like eating razor blades.” - a quote from a person with EB.
Thank you millions for your donation.
Thank you for checking out my page. Making a donation is fast, easy and secure thanks to Give as you Live Donate. They'll take your donation and pass it onto DEBRA.