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Total raised so far

18%

£370.00 of £2,000 target +£40.00 Gift Aid See breakdown

Recent donations

yesterday

Kelly Power

£20.00 + £5.00 Gift Aid

yesterday

Anonymous

£40.00 + £10.00 Gift Aid

Big love x

2 days ago

Ben Broadhead

£20.00 + £5.00 Gift Aid

2 days ago

Amanda Smith

£20.00 + £5.00 Gift Aid

In memory of beautiful Lila Grace xxx

1 week ago

David Clark

£20.00 + £5.00 Gift Aid

1 week ago

Anonymous

£10.00 + £2.50 Gift Aid

3 weeks ago

Billy.

£20.00

3 weeks ago

Sarah Rountree

£10.00 + £2.50 Gift Aid

3 weeks ago

Roasty

£20.00 + £5.00 Gift Aid

3 weeks ago

Juliet Hamilton

£10.00

Good luck to everyone that’s doing this challenge too , a very special worthy cause x

Mandi, Mark and Sarah (MM&S) are raising money for Pitt Hopkins UK

⚡️Lila's legathon Challenge! ⚡️

Event dates: 1st March 2023 – 31st March 2023


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Our story

To keep gorgeous Lila's legacy going and to raise money for Pitt-Hopkins (https://pitthopkins.org.uk or https://pitthopkins.org.uk/general-info/pitt-hopkins-information-film/), Marvellous Mandi has kindly arranged a charity event for everyone at any age to get involved in, please join us for a very worthy cause!

https://www.facebook.com/groups/409352608054972

Welcome to ‘LILA’S LEGATHON CHALLENGE‘

⚡️From the 1st-8th of March we will be completing 13,000 daily steps or 40 squats or 40 press-ups!

⚡️Don’t forget that you can alternate the moves daily i.e if you’re sat at a desk, steps might not be an option that day so you can choose squats or press-ups instead! If you really want to challenge yourself choose 2 or all 3 options!

⚡️Always remember to warm up first & check out the teaching points & options! There is something for EVERYONE on this challenge so please get involved.

⚡️💖LEGS GO FOR LILA💖⚡️

Lila's personal story we would like to share with you:

"Lila's journey was destined to be different – something we were oblivious to until Lila was around four months old when she missed key milestones. Lila was eventually diagnosed with Pitt-Hopkins (a sporadic genetic disorder) when she was around 18 months old. We were told it would cause significant cognitive delay, affect her mobility and most likely be non-verbal. Crushing news for any parent but we made sure Lila lived life to the full and didn’t miss out. Despite her struggles, she was such a beautiful and happy little girl. Lila was always smiling, clapping and flapping her arms about - she was an absolute joy to be around. Lila was mad for music and swimming - it brought out the best in her and helped incredibly with her development. Lila absolutely loved school - she literally tripped over her own feet to sit in her wheelchair and make it onto the school bus. Lila would light up a room with her infectious laugh and electrifying smile. She had an indescribable zest for life and such a happy nature that was admired by all. Her unexpected and tragic passing has been deeply upsetting for her family and friends. Lila really was the girl that made the world smile, and her legacy will live on forever. We are so proud of everything Lila achieved in her all too short life."


Thank you for checking out our page. Making a donation is fast, easy and secure thanks to Give as you Live Donate. They'll take your donation and pass it onto Pitt Hopkins UK.

Mandi, Mark and Sarah (MM&S) are fundraising for

Pitt Hopkins UK

Charity number: 1167153

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