Skip to main content

This page is closed and is not accepting further donations

Total raised so far

£2,785.00 +£553.75 Gift Aid See breakdown

Recent donations

1 year ago

Anna

£30.00

+ £7.50 Gift Aid

1 year ago

Anna Smith

£20.00

Great work!!!

1 year ago

Gemma Silke

£20.00

+ £5.00 Gift Aid

1 year ago

Steph

£10.00

+ £2.50 Gift Aid

Well done!!

1 year ago

Sally S.

£5.00

1 year ago

Audrey

£10.00

+ £2.50 Gift Aid

Motivated...

1 year ago

Heather Birrell

£10.00

+ £2.50 Gift Aid

Well done Mike, what a great time.

1 year ago

Davina and Jo

£30.00

+ £7.50 Gift Aid

1 year ago

Xian Li

£10.00

+ £2.50 Gift Aid

Well done Mike!

1 year ago

Anonymous

£50.00

+ £12.50 Gift Aid

Sorry this is a bit late.

Mike’s smashing the London Marathon!

Event date: 2nd October 2022

Mike Johnston is raising money for Narcolepsy UK

My story

I am absolutely delighted to be running the London Marathon on behalf of Narcolepsy UK.

I suffer from Narcolepsy (a rare long-term brain condition that causes a person to suddenly fall asleep at inappropriate times) and Cataplexy (temporary loss of muscle control resulting in weakness and possible collapse, often in response to emotions such as laughter and anger).

I think I have had symptoms from about the age of 14 or 15, but I was not diagnosed properly until I was 20. I therefore had to deal with the symptoms through the last (and most important) years of school and also the first two years of University. By all accounts, I am one of the lucky ones. There are countless stories of people who have taken years, sometimes decades, to get diagnosed with Narcolepsy and have had to get through life without any medication to help with the symptoms of the condition.

Given the effect that Narcolepsy can have on daily life, there are lots of people with Narcolepsy who are unable to work or unable to do any exercise. I am running the London Marathon for them to show that just because someone has Narcolepsy doesn't mean that they should be written off. We can all still achieve great things, we might just need a bit more support than others.

Narcolepsy UK is a charity run by people with experience of the issues that people with Narcolepsy face. It covers a whole host of ways in which it can support people with Narcolepsy which includes providing support and advice in relation to the condition and also potential benefits applications. The other main role that Narcolepsy UK plays is to raise awareness of Narcolepsy and to spread the word so that less people have to wait years to be able to be diagnosed because society and GPs will be more awake to the fact that someone may have Narcolepsy.


Thank you for checking out my page. Making a donation is fast, easy and secure thanks to Give as you Live Donate. They'll take your donation and pass it onto Narcolepsy UK.

Mike Johnston is fundraising for

Narcolepsy UK

Charity number: 1144342

Mike Johnston is fundraising as part of

London Marathon 2022

2nd October 2022

Powered by Strava

More great ways you can raise funds