Holiday Activity #16 - Finale
Newport Marathon 2026 Fundraiser for DEBRA
Event date:
Stephen Protheroe-Hewitt is raising money for DEBRA
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My story
This year, I will be running the Newport Marathon on Sunday 19th April in support of DEBRA.
DEBRA are a leading charity that raise awareness and support people with epidermolysis bullosa (EB), a rare and very painful genetic skin condition that causes the skin to blister and tear at the slightest touch, hence the term 'butterfly skin' due to how fragile a butterfly's wing is.
This fundraiser is in memory of Iqbal Domun (or Bal, as he was known to his many colleagues and friends), who was born with EB and lived with the constant pain throughout his life. However, those who knew him always saw someone continuously positive, upbeat and ready to do anything, having a very good sense of humour wherever he went.
All money raised will support DEBRA in providing specialist care, as well as assist with ongoing research into improved treatment and potential cures, to improve quality of life for anyone with EB.
Any donations whatsoever would be greatly appreciated.
Thank you for checking out my page. Making a donation is fast, easy and secure thanks to Give as you Live Donate. They'll take your donation and pass it onto DEBRA.
My updates
Holiday Activity #12
Holiday Activity #14
Holiday Activity #13
Holiday Acivity #11
This page is in memory of
Iqbal Domun
Charity
DEBRA
Charity number: 1084958
Activity tracker
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Total distance
Recent donations
By 25 supporters
Lee
£35.00
+ £8.75 Gift Aid
Good luck Stephen Ronald John Protheroe-Hewitt! The dedication you've shown to training will pay off. Looking forward to cheering you on, on the day!
Keith
£30.00
+ £7.50 Gift Aid
Good luck Stevo!
Denise Jones
£10.00
+ £2.50 Gift Aid
Good luck! 👊
Chantelle
£30.00
Good luck! Such a great cause and tribute to Bal X
Lisa Pitt
£10.00
+ £2.50 Gift Aid
Great cause in memory of a great person. Best of luck x
Louise
£20.00
+ £5.00 Gift Aid
Good luck ❤️
Karen Price
£10.00
+ £2.50 Gift Aid
Well done Steve. So proud of how far you've come on your journey and have no doubt you will complete this one to.o
Matt Smith
£30.00
+ £7.50 Gift Aid
Good luck in your marathon Steve!
Zuzanna
£20.00
+ £5.00 Gift Aid
Good luck with your training from a fellow DHCW marathon runner :)
Gill Davies-Evans
£10.00
+ £2.50 Gift Aid
Something to help you reach your target. I'm positive you will achieve this for your late friend Bal and others who suffer from this debilitating condition.
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