Rachel's Skydive in aid of DEBRA

On Sunday 4th August 2024 I will be doing a skydive from 12,000ft at Headcorn, Kent. in aid of DEBRA.

Myself & Tony have been supporters of DEBRA  for many years and sit on their fundraising events committee.
DEBRA (debra.org.uk) is a charity supporting sufferers of Epidermolysis Bullosa (EB), “the worst disease you’ve never heard of”. EB is an incredibly painful group of genetic skin conditions that cause the skin to blister and tear at the slightest touch - those born with EB have skin so fragile they are sometimes called 'butterfly children'. People living with EB are in constant debilitating pain and in many cases it can be fatal . There are at least 5,000 people living with this devastating condition in the UK and 500,000 worldwide. DEBRA focuses its work in two areas - the charity provides care and support to individuals and families living with EB and funds pioneering research to find effective treatments and, ultimately, a cure for EB.

With your support, DEBRA will continue to invest in drug repurposing clinical trials and providing an enhanced programme of community care and support for those living with EB (debra.org.uk/appeal/be-the-difference-for-eb )

Your donations will help us improve the lives of those living with EB, as well as hopefully getting us closer to a cure. Every donation helps the fight against EB.
DEBRA receives NO Government funding so your support is vital and very much appreciated.

Thanking you in advance,

Rachel XX