Riding 150km in support of debra

Dear Supporter,

It has been a while since I have taken on a sporting challenge as a means of raising money for a worthwhile cause.  It feels that now is the right time.  On the 26th of May I will take on the 150km Ride London bike ride.  This challenge is in support of a charity, close to my heart - DEBRA.

For those of you who know me well, you will know that I have spent much of my career in the area of advanced wound care.  There are many people across UK who, for one reason or another, require wound treatment.  One such group of people are those suffering with epidermolysis bullosa (EB).  For those who don't know anything about EB I urge you to click the link at the bottom of this page.  I assure you, after reading, you will want to offer your support. 

DEBRA is the national charity supporting those directly affected by, and working with, EB, a potentially fatal skin condition that causes constant pain due to unstoppable internal and external blistering. DEBRA provides life-long care and support to the entire EB Community. In my line of work, I have know about DEBRA for many years it is also a coincidence that the charity head office is a mere stones throw from my home.

The aim of DEBRA is simple

A Life Free of Pain

A life free of pain is what we all want. Unfortunately for people living with EB, excruciating pain is something they must live with, every day.
EB is an incredibly painful genetic skin blistering condition. It causes the skin to blister and tear at the slightest touch. With skin as fragile as a butterfly’s wings, it’s often referred to as ‘Butterfly Skin’. EB can affect the hands and feet only or in the most severe cases any part of the body, including blistering on the eyes and internal organs. People living with EB live in constant debilitating pain and in severe cases it can be fatal.
There is hope though.
There are drugs already available within the NHS to treat other inflammatory skin conditions such as Psoriasis and Atopic Dermatitis which could significantly improve blistering and overall quality of life for people living with EB.
With your help we can test these drugs, with your help we can find treatments that will enable people to live free from the pain of EB.

Visit DEBRA.org.uk or call 01344 771961 to learn more.

Thank you.