Robs 36 hour Instagram live

5 years ago my daughter was diagnosed with Narcolepsy and Cataplexy, a rare, neurological condition which affects just 1 in 2000 people, approximately 3 million people worldwide. The most common symptom is uncontrollable tiredness but the condition is so much more than that. A few years ago I did a 36 hour live on Instagram. I stayed awake, cooked food on the barbecue and talked to lots of people for 36 hours straight! Why 36 hours? Well, someone with narcolepsy feels like they’ve been awake for 36 hours every single day. That’s why I picked 36 hours. So I could experience what my 11 year old daughter feels like day in and day out. There is such little awareness about the condition and my goal is to bring that awareness, get people talking about it and raise as much money as I can. Narcolepsy U.K. have been simply amazing in supporting us on our journey. We would not be where we are without them.