Running for Emily

On Sunday 2nd October I ran the London Marathon to raise money in celebration of the brilliant Emily Mills.

Emily lives with a very rare genetic condition called Dravet Syndrome. Often described as a complex form of epilepsy, Dravet Syndrome is a rare neurological condition that affects around one in every 15,000 people in the UK. As well as experiencing severe, difficult-to-control seizures, children and adults with Dravet Syndrome have varying degrees of intellectual disability and a spectrum of associated conditions , which may include autism, ADHD, behaviours that challenge and difficulties with speech, mobility, eating and sleep.

Since being diagnosed in 2018, Emily has experience thousands of seizures, and had dozens of hospital stays, but she continues to amaze and amuse everybody who is lucky enough to spend time with her. She loves horses, guinea pigs and pancakes and very recently started her first year of school.

Emily and her family have benefitted hugely from the support provided by Dravet Syndrome UK, and East Anglia’s Children’s Hospices, and I would like to give something back to thank them for everything they have done and continue to do for Emily and other children.

Thank you so much for supporting me!
Aimee