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Total raised so far

206%

£1,030.00 of £500 target +£188.48 Gift Aid See breakdown

Recent donations

2 months ago

Laura Clay

£15.00

+ £3.75 Gift Aid

2 months ago

Lucy Wilde

£30.00

+ £7.50 Gift Aid

Well done Sarah 🥰

3 months ago

Sally, Ben & Albie

£20.00

So proud of you Sare, you absolutely smashed it. Massive well done beautiful. Love you xxx

3 months ago

Ally Benbow

£20.00

Well done - super proud of you! 👏🏼 😘

3 months ago

Marin Beddoes

£10.00

Well done Sarah 👏

3 months ago

Clair Moelwyn-Williams

£50.00

+ £12.50 Gift Aid

Well done Sarah, amazing xx

3 months ago

Alan Jeb

£10.00

+ £2.50 Gift Aid

Well done Sarah 👏

3 months ago

Stephen and Pauline Dawson

£25.00

+ £6.25 Gift Aid

Good luck Sarah

3 months ago

Stuart Edwards

£20.00

+ £5.00 Gift Aid

You’ve worked really hard so just enjoy it today.

3 months ago

Katy Dawson

£20.00

You’ve got this Sarah! Cheering you on from Oz ❤️

Sarah runs Vrynwy half for DEBRA

Event date: 15th September 2024

Sarah Hartshorn is raising money for DEBRA


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My story

So why have I decided to sign up for a half marathon?!..

I have a skin condition called Epidermolysis Bullosa (EB) and want to raise awareness (& some money) for DEBRA who support the condition.

EB is a rare genetic condition and causes the skin to be very fragile and blister easily. I have EB Simplex which is the mildest form affecting around 3,500 people in the UK.  Whilst I (and my family) are some of the luckier ones, in warmer climates and during the summer months it can impact on daily life, makes walking very painful and can stop us doing certain activities.

EB is a group of life-changing and sometimes life-threatening skin conditions that cause the skin to become very fragile and tear or blister at the slightest touch. In mild forms of EB, such as mine, blistering mainly occurs on the hands and feet. However, the widespread blistering in more severe cases can make the skin vulnerable to infections and extensive scarring can occur. In severe cases, blistering can occur all over the body and even on internal organs. It can also mean a higher risk of developing skin cancer. At the moment there is no cure!

DEBRA UK provides care and support to improve quality of life for people living with EB, and to fund cutting-edge research to find effective treatments and, ultimately cure(s) for EB.

I have suffered with blisters for as long as I can remember, it can be really awful. Luckily, I generally remember the good times I had, and not the time spent bandaging my feet or feeling frustrated at not being able to walk. Thank you to my friends and family who are so patient with me!

So, I’m going to spend the summer taking very good care of my feet and have signed up to run Lake Vrywny half marathon. Certainly a challenge for someone with EB!

No matter how big or small your donation it will make a huge difference to DEBRA UK, and more than anything I want to raise awareness!

Thank you


Thank you for checking out my page. Making a donation is fast, easy and secure thanks to Give as you Live Donate. They'll take your donation and pass it onto DEBRA.

My updates

3 months ago

Half Marathon Race with Runna ✅

Lake Vyrnwy Half Marathon Plan (Week 15/15)

Half Marathon race at 6:15-6:35/km

21.3km distance
2:31:32 time
7:03min/km speed

3 months ago

Peloton - 20 min 1 sec Just Walk: Outdoor

512m distance
0:19:42 time
38:45min/km speed

3 months ago

Thursday Evening Run with Runna ✅

Lake Vyrnwy Half Marathon Plan (Week 15/15)

2km warm up at a conversational pace (no faster than 6:35/km), keeping things easy for the majority. Within the warm up do 4 x 100m fast 'strides' aiming for around 5:35/km. 60s walking rest

4 reps of:
• 1km at 6:25/km, this is your target Half Marathon pace, 90s walking rest

1km cool down at a conversational pace (or slower!)

7031m distance
0:49:17 time
6:51min/km speed

3 months ago

11km Long Run with Runna ✅

Lake Vyrnwy Half Marathon Plan (Week 14/15)

2.5km at a comfortable pace
2km at 6:25/km (your target Half Marathon pace)
2.5km at a comfortable pace
1.5km at 6:25/km (your target Half Marathon pace)
2.5km at a comfortable pace

10.0km distance
1:09:28 time
6:56min/km speed

3 months ago

5 min Core Strength with Jermaine Johnson

0m distance
0:07:35 time
6:56min/km speed

Sarah Hartshorn is fundraising for

DEBRA

Charity number: 1084958

Powered by Strava
2 5 4 . 4 km Total distance ran

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