Scott Moore running the Great North Run 2023 for DEBRA

My Story

As a father of a nine year old girl I have been so moved and inspired by Football legend, and TV pundit, Graeme Souness’s recent swim across the English Channel. The motivation for the swim was for his good friend Isla Grist, 14. Isla is living with Epidermolysis bullosa (EB), a genetic skin conditions that cause the skin to become very fragile and tear or blister at the slightest touch leaving her in constant and extreme pain.

There is currently no known cure for EB but there are treatments aimed at helping alleviate some of the debilitating symptoms. At (D.E.B.R.A) UK Dystrophic Epidermolysis Bullosa Research Association, their work is focused on funding research to find new treatments and a cure, as well as providing support to people living with EB to enhance their quality of life through improved healthcare.

I love a challenge, but I have to admit that it has been a few years (2015) since I last did the Great North Run which has been due to a persistent knee problem but having been made aware and educated of EB through Isla’s story I am determined to complete the challenge and in doing so raise awareness of EB and supporting DEBRA to find the treatments that are so desperately needed.

I want to try and do something that could make a difference to Isla’s and the many sufferers of EB. Please join me in supporting DEBRA’s A Life Free of Pain appeal where every pound raised will get us one step closer to stopping the pain for people like Isla, living with EB.

Every donation received helps DEBRA research future treatments that could transform the lives of thousands of people who currently have to live with this awful condition.

Please play your part by giving any amount that you can spare.

Thank you for your support.

Scott x