Stepping Up for Isla Grist - A Million Steps in September

This September, I am taking on a monumental challenge: walking a million steps to support DEBRA UK’s 2024 'BE the difference for EB' appeal.

I’m inspired to undertake this challenge because of Isla Grist’s incredible story.

Isla lives with Epidermolysis Bullosa (EB), a rare and painfully debilitating genetic skin disorder often referred to as 'Butterfly Skin.' Her skin is so delicate that even the gentlest touch can cause blisters or tears. Despite enduring unimaginable pain daily, Isla’s strength and positivity are nothing short of remarkable. Her bravery in the face of such adversity has deeply moved me and motivated me to act.

By walking a million steps, I aim to raise awareness and funds for DEBRA, a national charity dedicated to supporting those with EB. Your contributions will help fund crucial drug repurposing clinical trials and expand DEBRA UK’s essential community support programs. These efforts are vital in bringing us closer to effective treatments and significantly improving the quality of life for individuals like Isla.

Together, we can BE the difference for EB. Thank you.