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Total raised so far

35%

£5,380.00 of £15,000 target +£1,036.25 Gift Aid See breakdown

Recent donations

8 hours ago

Mr David Walters

£50.00

+ £12.50 Gift Aid

yesterday

Leanne Casley

£20.00

Raffle

yesterday

Elizabeth Wibley

£10.00

+ £2.50 Gift Aid

Raffle

yesterday

Anonymous

£15.00

+ £3.75 Gift Aid

2 days ago

Emma Bailey

£10.00

+ £2.50 Gift Aid

Raffle 💙

2 days ago

Chris Bond

£10.00

+ £2.50 Gift Aid

Wish I could do more x

2 days ago

Anonymous

£20.00

+ £5.00 Gift Aid

3 days ago

Lorraine Farrow

£10.00

+ £2.50 Gift Aid

Raffle

4 days ago

Anonymous

£5.00

+ £1.25 Gift Aid

5 days ago

Julianne, Fraser and family

£100.00

+ £25.00 Gift Aid

Keri and Family, So Great to see the family unit all supporting each other, stay Strong for Albi xxx

Team Albi - Kenya Trek for Epidermolysis Bullosa

Event dates: 26th October 2024 – 2nd November 2024

Ceri Mashlan are raising money for DEBRA


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Our story

Team Albi , Mark, Ceri and Cara are fundraising for DEBRA – The Butterfly Skin Charity. We have chosen this charity as it is close to our hearts. Our Daughter Erin & Partner Calum gave birth to their beautiful baby boy, Albi Ward-Blackman in August 2023.
 
Albi was born with Severe Recessive Dystrophic Epidermolysis Bullosa (RDEB - GS). This is an extremely rare and incredibly painful genetic skin disease; The slightest knock or friction caused by normal everyday activities will cause the skin to blister and/or shear. EB effects Albi both internally and externally meaning blisters also form on his eyes, mouth and oesophagus. Without a cure those with severe forms of EB are at a high risk of developing a aggressive form of skin cancer - Squamous cell carcinoma (typically in their 20s) which is usually fatal. Being such a rare genetic disease raising awareness and helping to fund research and trials is critical to #StopThePain that Albi and others born with EB live with every day.
 
To help raise awareness and money for this amazing charity, the three of us will be completing a 5 day trek through Kenya this October (2024); we will be walking along the Great Rift Valley which runs the whole length of Kenya. We will be trekking up to 7 hours each day, this is going to be a real challenge and completely out of our comfort zones. To ensure we are prepared we are starting our training this month (February 2024). We are joining another incredible Charity – Velindre Cancer Centre on our trek through Kenya and are really look forward to completing this challenge together.
 
This will be a self-funded trip, meaning every penny that we raise will be going directly to DEBRA – The Butterfly Skin Charity. The money raised will massively help DEBRA to continue accelerating their drug repurposing programme, fund life-changing treatments and provide vital community support and healthcare to the EB community who suffer daily from this dreadful condition. 
 
In the lead up to the Kenya trek, we will also be organising other events such as a Charity Ball. We also look forward to participating in a Sky Dive organised by Tracy . Please keep your eyes peeled for our fundraising events throughout the year and when we list our sky dive participants.
 
As a family, we are so grateful for any support you can give us; every Like, Share, Sponsor or penny donated makes a huge difference, and will help Albi and all those that suffering with this disease on a daily basis. We must #StopThePain by finding a cure for EB.


Thank you for checking out our page. Making a donation is fast, easy and secure thanks to Give as you Live Donate. They'll take your donation and pass it onto DEBRA.

Our updates

1 week ago

Team Albi wants to thank you for your continued support in raising funds and awareness for DEBRA UK - The Butterfly Skin Charity 🦋. 

We have now raised to date (08/04/2024) an incredible £4500 meaning we are almost 1/3 of the way to our finally goal of £15k before our Trek in October. 

This money will go towards critical research searching for a cure for EB, whilst also supporting family’s like ours on a day to day basis to help manage the pain and ensure Albi and all EB suffers has access to all specialists appointments. 

We are looking to get tickets out for ‘Albi’s Butterfly Ball’ which will be in the Coed Y Mwstwr Hotel on the 16th of August so please keep your eyes peeled. We hope to make this a fantastic night for guests with a 3 course meal and live entertainment. Our goal is to raise lots of awareness and funds for the charity on this evening. Don’t forget to SAVE THE DATE! 

Albi suffers with Severe Recessive Dystrophic Epidermolysis Bullosa, this affects his both internally and externally with blisters forming on his eyes, in his mouth and oesophagus. Without a cure those with severe forms of EB (like Albi) are at high risk of developing aggressive forms of skin cancer (Squamous Cell Carcinoma) typically in their 20s which is usually fatal. 

Once again thank you for your continued support, every LIKE, SHARE or SPONSOR makes a huge difference. 

Please see this latest video from DEBRA UK and share where you can. 

TEAM ALBI 💙

2 weeks ago

‼️RAFFLE for Debra UK- Team Albi 🦋💙
Team Albi - continue to raise awareness and funds for Debra UK - The Butterfly Skin Charity for Epidermolysis Bullosa which our gorgeous Albi was born with.
We are doing a a raffle, where you could win a fantastic hamper filled with lots of goodies, including 2 bottles of wine & a bottle of Prosecco, 2 Yankee candles and other candle scents, potpourri Chocolates..........
To enter the raffle, you will need to click on the link below which goes to our fundraising page and also tells Albis story.
Two tickets for £5., please write your full name and enter the name raffle in the message box, so we know you have brought a ticket, with any contact details..
The raffle will be drawn in 3 weeks time on Friday 19th April, where all names will be entered into a hat and a winner drawn. if you don't live close and win the hamper , then this will be posted you.
To buy a raffle ticket click on the below link- remember to write raffle with your name in the message box.
donate.giveasyoulive.com/fundraising/team-albi-kenya-trek-for-epidermolysis-bullosa
Thank you so much for all the support and awareness already shown. Xx

Image uploaded with update

4 weeks ago

Team Albi T Shirts are all ready for our Trek in Kenya to raise awareness and funds for our beautiful brave Albi and all other EB suffers. Theses amazing Butterfly EB Babies, children and adults are so brave, we must keep going to help find a cure and  stop the daily pain they live with. 💙🦋

Thank you for all your support. 
Team Albi 🦋xx

Image uploaded with update

1 month ago

Team Albi, wanted to thank everyone so far who has donated, liked and shared our page, where we are doing a self funded  5 day Trek in Kenya, whilst also planning for other events to help raise funds and important awareness for Epidermolysis Bullosa (EB). 

Albi was born with a severe form of EB called Recessive Dystrophic Epidermolysis Bullosa. The huge support & awareness that has already been shown for Albi and all other EB suffers,  will  help massively in funding critical research & trials which are desperately  needed to help search for a cure and stop the daily pain that this dreadful rare genetic condition causes.  The most rare conditions like Albi's are at high risk of developing a aggressive form  of cancer  called- Squamous cell carcinoma (typically in their 20s) which is usually fatal.

As a family, we will continue to fundraise and raise awareness for this dreadful rare  & painful condition.  I have attached a link below of a video that #Debra UK has done -this  shows how your support will help in some areas for Albi and all other EB suffers.

Thank you so very much

Ceri Mashlan are fundraising for

DEBRA

Charity number: 1084958

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