Skip to main content

Total raised so far

42%

£6,313.00 of £15,000 target +£1,145.50 Gift Aid See breakdown

Recent donations

1 hour ago

🦋Albi Bands🦋

£6.00

🦋Bands🦋

2 hours ago

Suzanne Bowen

£30.00

+ £7.50 Gift Aid

This is truly inspiring

yesterday

Alysha Fyvie-Davies

£22.00

🦋Bands🦋

4 days ago

🦋Bands🦋

£15.00

🦋Team Albi Bands 🦋

6 days ago

Sharon & Paul

£20.00

6 days ago

Lorraine Farrow

£60.00

+ £15.00 Gift Aid

6 days ago

Stall at Llantwit Village Hall 💙🦋💙

£205.00

Thank you all who came to fete from Ceri, Lisa, Cara & Team Albi 💙🦋💙

6 days ago

Steve

£10.00

+ £2.50 Gift Aid

6 days ago

Lisa morgan

£20.00

+ £5.00 Gift Aid

You're amazing!

1 week ago

D&B Jersey Vault

£150.00

Keep up the good work guys! What an amazing cause for an amazing little warrior! Best of luck on your Kenya Trek, from us both at D&B Jersey Vault

Team Albi - Kenya Trek for Epidermolysis Bullosa

Event dates: 26th October 2024 – 2nd November 2024

Ceri Mashlan are raising money for DEBRA


Share this page with your friends:

Our story

Team Albi , Mark, Ceri and Cara are fundraising for DEBRA – The Butterfly Skin Charity. We have chosen this charity as it is close to our hearts. Our Daughter Erin & Partner Calum gave birth to their beautiful baby boy, Albi Ward-Blackman in August 2023.
 
Albi was born with Severe Recessive Dystrophic Epidermolysis Bullosa (RDEB - GS). This is an extremely rare and incredibly painful genetic skin disease; The slightest knock or friction caused by normal everyday activities will cause the skin to blister and/or shear. EB effects Albi both internally and externally meaning blisters also form on his eyes, mouth and oesophagus. Without a cure those with severe forms of EB are at a high risk of developing a aggressive form of skin cancer - Squamous cell carcinoma (typically in their 20s) which is usually fatal. Being such a rare genetic disease raising awareness and helping to fund research and trials is critical to #StopThePain that Albi and others born with EB live with every day.
 
To help raise awareness and money for this amazing charity, the three of us will be completing a 5 day trek through Kenya this October (2024); we will be walking along the Great Rift Valley which runs the whole length of Kenya. We will be trekking up to 7 hours each day, this is going to be a real challenge and completely out of our comfort zones. To ensure we are prepared we are starting our training this month (February 2024). We are joining another incredible Charity – Velindre Cancer Centre on our trek through Kenya and are really look forward to completing this challenge together.
 
This will be a self-funded trip, meaning every penny that we raise will be going directly to DEBRA – The Butterfly Skin Charity. The money raised will massively help DEBRA to continue accelerating their drug repurposing programme, fund life-changing treatments and provide vital community support and healthcare to the EB community who suffer daily from this dreadful condition. 
 
In the lead up to the Kenya trek, we will also be organising other events such as a Charity Ball. We also look forward to participating in a Sky Dive organised by Tracy . Please keep your eyes peeled for our fundraising events throughout the year and when we list our sky dive participants.
 
As a family, we are so grateful for any support you can give us; every Like, Share, Sponsor or penny donated makes a huge difference, and will help Albi and all those that suffering with this disease on a daily basis. We must #StopThePain by finding a cure for EB.


Thank you for checking out our page. Making a donation is fast, easy and secure thanks to Give as you Live Donate. They'll take your donation and pass it onto DEBRA.

Our updates

4 hours ago NEW

🦋💙Team Albi continue to raise awareness for Albi and all those that suffer with Epidermolysis Bullosa. We are selling Albi bands to support the Charity DEBRA UK to work towards finding a cure for this extremely rare and painful condition. Thank you for your continued support, as a family we are so grateful x 🦋💙

Image uploaded with update

4 weeks ago

Albi's Butterfly Ball in aid of DEBRA UK

Tickets on sale from Thursday 2nd May at 6pm

Please click the link below for more information and to book your tickets.
buytickets.at/teamalbiinaidofdebrauk/1223000

We as a family are so grateful for all the support that has been shown so far. The ball will be a great night; our aim is to continue to bring the much needed awareness and funding for those living with Epidermolysis Bullosa (EB).

We would also like to say a special thank you to Coed y Mwstwr Hotel Bridgend who are kindly hosting the event and have been incredibly supportive.

A thank you to Karen for Panache Weddings Ltd who will be decorating the venue for us.

Image uploaded with update

1 month ago

🦋 700 of these arrived today as we continue to support and raise awareness of Epidermolysis Bullosa for Albi and all EB sufferers 🦋
Will be asking some local companies to have these in charity boxes around the area soon. DEBRA UK

Image uploaded with update

1 month ago

Team Albi wants to thank you for your continued support in raising funds and awareness for DEBRA UK - The Butterfly Skin Charity 🦋. 

We have now raised to date (08/04/2024) an incredible £4500 meaning we are almost 1/3 of the way to our finally goal of £15k before our Trek in October. 

This money will go towards critical research searching for a cure for EB, whilst also supporting family’s like ours on a day to day basis to help manage the pain and ensure Albi and all EB suffers has access to all specialists appointments. 

We are looking to get tickets out for ‘Albi’s Butterfly Ball’ which will be in the Coed Y Mwstwr Hotel on the 16th of August so please keep your eyes peeled. We hope to make this a fantastic night for guests with a 3 course meal and live entertainment. Our goal is to raise lots of awareness and funds for the charity on this evening. Don’t forget to SAVE THE DATE! 

Albi suffers with Severe Recessive Dystrophic Epidermolysis Bullosa, this affects his both internally and externally with blisters forming on his eyes, in his mouth and oesophagus. Without a cure those with severe forms of EB (like Albi) are at high risk of developing aggressive forms of skin cancer (Squamous Cell Carcinoma) typically in their 20s which is usually fatal. 

Once again thank you for your continued support, every LIKE, SHARE or SPONSOR makes a huge difference. 

Please see this latest video from DEBRA UK and share where you can. 

TEAM ALBI 💙

Ceri Mashlan are fundraising for

DEBRA

Charity number: 1084958

More great ways you can raise funds

Help us reach our £15,000 target

Your donations will help the great work DEBRA do.

Donate now